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Why are we here?

Brian
  • By Brian · April 11, 2008
  • Journal · 38 recommendations
  • When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...

Support your group and raise awareness with badges

Walter
  • By Walter · June 20, 2008
  • Journal · 18 recommendations
  • Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...

New feature - See what you've replied to

Walter
  • By Walter · April 25, 2008
  • Journal · 16 recommendations
  • Hello everyone. We just added a feature that many of you have requested - a list of all of the posts that you have replied to. To get to your list, all you need to do is: 1. Sign in 2. Click "Me" in the ...

Sometimes we make mistakes

Brian
  • By Brian · May 23, 2008
  • Journal · 14 recommendations
  • Two months ago, when we launched Inspire 2.0, we added a group called 'Team Inspire'. We did this with the best intentions: we wanted the group to be a space for new members to get oriented, ask questions ...

Welcome from TeamInspire!

TeamInspire
  • By TeamInspire · March 13, 2008
  • Journal · 14 recommendations
  • Hello, old friends and new. Today is a big day for us! We have made numerous improvements to your community, most that were suggestions from you. As you can see the site is very different then before ...

Welcome!

Brian
  • By Brian · March 13, 2008
  • Journal · 12 recommendations
  • I am pleased to present Inspire 2.0 -- the result of many months of fun and hard work. We have made numerous improvements to your community, the vast majority of which are ideas that came from you! We ...

New feature: video!

Brian
  • By Brian · June 28, 2008
  • Journal · 10 recommendations
  • I am pleased to announce that we have updated Inspire to support video. You can now share a video of yourself, videos that you find inspirational or informative, and more. I've included one of myself ...

Changes that you have requested are on the way

Beth
  • By Beth · March 28, 2008
  • Journal · 9 recommendations
  • Hello everyone. We've been hard at work on many of the great suggestions that you've sent us. This week we've been cooking up some changes to the group home page, and hope to make them public very soon ...

New feature - additional reply notifications

Walter
  • By Walter · May 5, 2008
  • Journal · 8 recommendations
  • Hello everyone. We just added a new feature to help you follow the conversations that you are participating in. You will now get a notification whenever someone replies directly to one of your replies ...

Privacy and control

Brian
  • By Brian · August 27, 2008
  • Journal · 7 recommendations
  • At Inspire, we think about privacy all the time. Virtually every web site has a privacy policy; you can read ours here: http://www.inspire.com/about/privacy/. But simply following the letter of a privacy ...

Upcoming improvements to the messaging system

Walter
  • By Walter · June 1, 2008
  • Journal · 7 recommendations
  • Hello everyone. I'm writing to let you know about some long overdue improvements that we'll be making to this site's messaging system later this week. The messages section is the most frequently visited ...

Improvements to the message system are complete

Walter
  • By Walter · June 10, 2008
  • Journal · 6 recommendations
  • Hello everyone. Just a quick note to let you know that the improvements to the message system that I wrote about previously are complete. You can check them out now. You'll notice that we've grouped your ...

New feature - profile completeness gauge

Tasha
  • By Tasha · June 12, 2008
  • Journal · 5 recommendations
  • Greetings from TeamInspire! I'm your friendly neighborhood designer, here to tell you about some new features. You might notice that today we revamped your member homepage - https://www.inspire.com/member-home.pl ...

Oprah's Big Give

wheelchairman36
  • By wheelchairman36 · March 17, 2008
  • Discussion in Finding emotional support · 5 recommendations
  • I know lots won't know who I am because been a long time since posting. Oprah has gave 10,000 dollars to our local ABC affiliate to desperse among 4 organizations and the one has chosen me to recieve ...

Support

Lamariposa
  • By Lamariposa · April 25, 2008
  • Journal · 3 recommendations
  • My husband was diagnosed with VHL in 1996. He recently went through his 4th surgery and is starting to have a difficult dime dealing with everything. I am as supportive as can be. However, he thinks that ...

CANNIBAS SHRUNK MY TUMORS

diane1805
  • By diane1805 · March 23, 2008
  • Discussion in Medical treatments that worked for me · 3 recommendations
  • I just want to share my experience with you all. It started three years ago when i read an article on the internet about cannibas , stating that it was responsible for shrinking tumors in , it particulary ...

**Updated** System maintenance: Tuesday June 10th, 5 am - 7 am Eastern

Walter
  • By Walter · June 4, 2008
  • Journal · 2 recommendations
  • ** Updated ** Due to power outages caused by storms in the Washington, DC area, we need to postpone this maintenance until Tuesday June 10th, from 5 am to 7 am. Thanks for your patience. ** Updated ...

Opportunity in Chicago Sat May 31 - info about clinical trials process

joyceg98
  • By joyceg98 · May 6, 2008
  • Discussion in Medical treatments that worked for me · 2 recommendations
  • On Saturday morning, May 31, Nancy Roach and Mike Katz are helping to convene a couple of focus groups of patient advocates at the 2008 American Society of Clinical Oncology (ASCO) meeting in Chicago ...

Need a friend

Cancerkid777
  • By Cancerkid777 · August 20, 2008
  • Discussion in Finding emotional support · 1 recommendation
  • I need to find a friend who I'm like. Someone who is picked on in school, has a disease, ya'know, the works ...

Cancer since age 4

Cancerkid777
  • By Cancerkid777 · August 20, 2008
  • Journal · 1 recommendation
  • Hey, I'm Cancerkid (Actualy, It's Alex) And I'm one of the youngest ever diegnosed with VHL. That's me in the top corner on the homepage! I have a very rough story, too. At age 4 I was unable to hear ...

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The VHL Family Alliance Support Community connects patients, families, friends and caregivers for support and inspiration. The VHL Family Alliance Support Community is sponsored by the VHL Family Alliance in partnership with Inspire.