Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
New journals
Just a journal entry
- By Ieva · Posted June 7, 2009
- 0 replies
- Yesterday we had municipal elections. Surprisingly small number of parties aspiring for leadership in our capital- just 20. And thanks to 5% barrier only four of them made it, including the favorite (because ...
Pre Implantion Genetic Diagnosis for VHL... The Decision
- By Vhl_pgd_girl · Posted June 6, 2009
- 1 reply
- So June 2009 and PGD edges closer... (this is a long one with all the background, get a cuppa or skip it and just follow my progress in bite-size, 140 character chunks on Twitter.com (VHL_PGD_GIRL) Since ...
Sexism
- By Ieva · Posted June 4, 2009
- 4 replies
- Yesterday I finally obtained prescription of estradiol- just a year and four months after hysterectomy. I was rather edgy (after having been turned down by several gynecologists), but everything went ...
Are you ready for an emergency?
- By joyceg98 · Posted June 3, 2009
- 0 replies
- This week's radio show features two members of the Police and Public Health departments of the Town of Brookline, talking about what they are doing to prepare for emergencies -- everything from avian ...
Round 3!! FIGHT!
- By FridayThe13th · Posted May 30, 2009
- 15 replies
- Geez, it's been over a year since I've posted anything on here. I hope I'll stick to it this time. Procrastinate much? Anyways, journal it's that time again. Time to face the sleeping giant. Tuesday July ...
Knowledge
- By Ieva · Posted May 29, 2009
- 0 replies
- Today I went to the ophthalmologist and managed to decipher her scrawl, except recommendations for my primary care specialist. Anyway nothing dangerous for the time being however now it is clear that ...
Trouble losing weight?
- By joyceg98 · Posted May 27, 2009
- 5 replies
- Tomorrow Thursday May 28, 3 pm Eastern US time, I will be speaking with Brett Salisbury, a Certified Sports Nutritionist, about weight and health. Several times people have told me that they need to take ...
Guestbooks are now live!
- By TeamInspire · Posted May 26, 2009
- 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
Amyloidosis Support Groups Inc. - NYC-Manhattan
- By Muriel · Posted May 25, 2009
- 0 replies
- Hope to see everyone at Mt. Sinai next Saturday at 9am....Dr. Angela Dispenzierir of the Mayo Cl.. inic will be our guest and it should be a great meeting. People are coming in from all over New England ...
Guestbooks - An exciting addition to Inspire
- By TeamInspire · Posted May 20, 2009
- 35 replies
- Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...
Doctors
- By Ieva · Posted May 19, 2009
- 0 replies
- I have once said that I wish I had doctor like doctor House and I certainly believe that men are easier to work with than women (though my worst experience was with man). But if I do away with stereotypes ...
Languages
- By Ieva · Posted May 18, 2009
- 0 replies
- Russians have a word "to football" which describes sending from one office to another....Thats what I like Russian for- its so colorful and picturesque (though less and less Latvians understand it even ...
recovery
- By sissy0513 · Posted May 17, 2009
- 1 reply
- Well I am home or at mom and dad's it has been 5 days since surgery, I am still tired alot and have some pain/discomfort, my stomach is upset much of the time but for now I am off of all meds. We shall ...
Formalities
- By Ieva · Posted May 16, 2009
- 3 replies
- On Wednesday I my primary care specialist suggested again that I should settle all formalities for disability pension. I agreed. No that I really cared about pension which is ridiculously small (hardly ...
A destiny?
- By Ieva · Posted May 14, 2009
- 1 reply
- I actually got interested in medicine at the age of nine and long before it become clear I had Cowden's disease. It happened after 8th of March party at my parents workplace (this day was intensely celebrated ...
My Son
- By LynneJoyce · Posted May 11, 2009
- 3 replies
- My son has had 2 brain tumors removed, first one at the age of 15 and the second last summer. Age 20. He has had 4 spinal tumors removed over the last 4 years, the last one on January 5th. Yesterday we ...
Primary healthcare
- By Ieva · Posted May 11, 2009
- 6 replies
- I haven't written for quite a period, to great extent because it turned out that I actually have Cowden's disease. However it is disease of the same kind and there are no support groups most likely because ...
Camp New Focus
- By chefdavid · Posted May 7, 2009
- 5 replies
- NF family camp in Michigan. September 18th,19th & 20th. Focusing on our Future. If you would like to come to this family weekend full of fun and laughter please send me an e-mail and I would send you ...
Questions about Transplant?
- By joyceg98 · Posted May 6, 2009
- 3 replies
- Thinking about whether to sign that donor card at the registry of motor vehicles? Or are you in a situation where you could benefit from a donated organ? Bring your questions about transplantation to ...
Pheochromocytoma/paraganglioma study
- By joyceg98 · Posted May 6, 2009
- 1 reply
- Something that may be of interest to some of you - message I received this morning. -- Joyce I am a researcher with Oxford Outcomes. We specialize in patient reported outcomes. We are currently recruiting ...
