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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
New journals
The Other Side of the Moon
- By MariaKaminski · Posted August 10, 2009
- 13 replies
- I was out on my porch swing and it was silent. No traffic, no noise, just me and the fire flies acrossed the street in the park. I looked up and noticed it was a full moon. It was a cloudy sky so there ...
Scheduled maintenance this evening
- By TeamInspire · Posted August 10, 2009
- 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
Nutrition to Enhance the Immune System
- By joyceg98 · Posted July 21, 2009
- 6 replies
- This week's interview is with Haylie Pomroy, the nutritional consultant who spoke at our Anaheim meeting in June. She is really terrific, and I know you will enjoy hearing what she has to say. Please ...
Back In Black ( Compression Socks )
- By FridayThe13th · Posted July 19, 2009
- 3 replies
- Just a little update today. Ever since my surgery I haven't really felt like being on a computer. Hopefully I'll get my post op video on YouTube soon, and yes when I do I'll post the link here. Everything ...
Jacomet on Happiness
- By joyceg98 · Posted July 15, 2009
- 0 replies
- Pierre Jacomet, a philosopher and television personality in Chile, has a new blog. http://jacomet.olivoediciones.net/ Pierre has von Hippel-Lindau, and chairs our affiliate group in Chile. He will be ...
New to this!
- By kate63 · Posted July 11, 2009
- 4 replies
- What a great idea this is. I hope to find answers regarding insurance and doctors, and also for pain management; and in return to provide inspiration with my own experiences. The best medicine, in my ...
I lived to tell the tale
- By FridayThe13th · Posted July 11, 2009
- 10 replies
- I'm still up at NiH but the computer in my room is screwed up so I hobbled my fat lil butt all the way to the library to post this. See how much I love you guys? lol ( anybody who's stayed at 3NW knows ...
No title
- By Ieva · Posted July 7, 2009
- 0 replies
- Have not written for a while, since I was involved with bureaucrats. Ones allocated me II group of disability, but no pension (however meager) so far, since one of employees of state revenue service ...
Did you attend the conference? Why? or Why not?
- By joyceg98 · Posted July 2, 2009
- 6 replies
- Let's talk about the pros and cons of attending a patient conference. What are the benefits? or what kept you away? We would like to learn, so that we can serve you better. http://bit.ly/14wRzy The radio ...
Heading to Maryland Sunday and Hare Krishna
- By FridayThe13th · Posted July 2, 2009
- 6 replies
- It's almost that time. Time to go get this over with. One more day at work then the infamous "VHL Vacation" I just keep reminding myself..."It is what it is". I stopped the other day to think about it ...
My son
- By Porq · Posted July 1, 2009
- 3 replies
- May 7th, 2009 is a day that I will never forget. It started out with that dreaded phone call at work insisting that I get home immediately. What was supposed to be a somewhat normal doctors visit for ...
thanks for support
- By teray · Posted June 29, 2009
- 0 replies
- thank you to everyone who responded. We will be better prepared with questions for our appointment in boston ...
support
- By teray · Posted June 24, 2009
- 6 replies
- Help my husband is living with vhl had a pheo removed 10 years ago. Its back but cant locate it. Also has a cyst in the brain is living with severe pain in arms and legs. There are days weeks months he ...
Questions about how drugs get approved?
- By joyceg98 · Posted June 24, 2009
- 1 reply
- I'm talking this afternoon (Wednesday) with Marlene Haffner, former head of the Orphan Drug section of the FDA. This came up relatively quickly, as we had to squeeze it into her busy schedule, but the ...
Support and Other Things
- By FridayThe13th · Posted June 18, 2009
- 2 replies
- First of all I just wanted to say thank you to everyone who replied to my last post. I think I was a little overly emotional when I posted that entry, but no it wasn't a cry for help or anything of the ...
Tornado
- By joyceg98 · Posted June 18, 2009
- 5 replies
- Well, this week I got to Practice what I've been preaching about emergency preparedness. I went to Memphis to celebrate my mother's 92nd birthday and spend some time with her and my Dad, who is 91 and ...
Share your story via video!
- By TeamInspire · Posted June 15, 2009
- 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
I am excited
- By kimberly4562 · Posted June 11, 2009
- 0 replies
- I hope I win this art contest!! You can enter too, but i hope you vote for me(: http://artcontest.mind2it.com/blogs/mind 2it.html ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · Posted June 10, 2009
- 32 replies
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
Alone you'll self destruct
- By FridayThe13th · Posted June 7, 2009
- 19 replies
- I've taken a bit of time looking through other people's journals on here today. There's hope, love, and families who've been made stronger because if nothing else is shared they share an illness. Sad ...
