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Recommended journals

Brain Stem Surgery

christytaylor
  • By christytaylor · Posted November 20, 2007
  • 2 recommendations
  • Has anyone had brain surgery done at anytie and eperienced loss of usage like with your hand or hands being numb or to where you can't use your body part ? I was justwondering, ecause back this past July ...

Genetic Alliance Member

mll
  • By mll · Posted October 15, 2009
  • 1 recommendation
  • From: "AnneMadeo" Date: Wed, 14 Oct 2009 12:06:59 To: Genetic Alliance Member Email List Subject: [memberforum] NIH research into experiences of parents with a child who is undiagnosed The National Human ...

The Other Side of the Moon

MariaKaminski
  • By MariaKaminski · Posted August 10, 2009
  • 1 recommendation
  • I was out on my porch swing and it was silent. No traffic, no noise, just me and the fire flies acrossed the street in the park. I looked up and noticed it was a full moon. It was a cloudy sky so there ...

My son

Porq
  • By Porq · Posted July 1, 2009
  • 1 recommendation
  • May 7th, 2009 is a day that I will never forget. It started out with that dreaded phone call at work insisting that I get home immediately. What was supposed to be a somewhat normal doctors visit for ...

Primary healthcare

Ieva
  • By Ieva · Posted May 11, 2009
  • 1 recommendation
  • I haven't written for quite a period, to great extent because it turned out that I actually have Cowden's disease. However it is disease of the same kind and there are no support groups most likely because ...

My life - an update

Sheela
  • By Sheela · Posted May 2, 2009
  • 1 recommendation
  • In August 2008 i had started feeling unwell again. I knew from the MRI scans that i had another haemangioblatoma on the right side of the cerebellum. I was told by the surgeon that he did not expect it ...

L IS FOR THE WAY YOU LOOK AT ME "A Love Story"

MariaKaminski
  • By MariaKaminski · Posted February 5, 2009
  • 1 recommendation
  • I am in no way an expert in love. I can only tell you what I know about it from experience. I was fortunate enough to experience on of the greatest loves in my life. It has changed me forever and I will ...

Snow

MariaKaminski
  • By MariaKaminski · Posted January 19, 2009
  • 1 recommendation
  • It snowed here yesterday and we got a total of about 18 inches. I shoveled the snow and went to help the neighbors dig out as well. I was done and it was still snowing. It was so beautiful coming down ...

Cancer since age 4

AlexAnderson
  • By AlexAnderson · Posted August 20, 2008
  • 1 recommendation
  • Hey, I'm Cancerkid (Actualy, It's Alex) And I'm one of the youngest ever diegnosed with VHL. That's me in the top corner on the homepage! I have a very rough story, too. At age 4 I was unable to hear ...

Pity

FridayThe13th
  • By FridayThe13th · Posted April 11, 2008
  • 1 recommendation
  • I hate the "look".I hate the uncomfortable silence.I hate so called friends who haven't picked up the phone in a month to just say hi because "they don't know what to say".I'm the same person I was before ...

eye tumors

sgtnutz
  • By sgtnutz · Posted March 11, 2008
  • 1 recommendation
  • I have a tumor in my left eye. I've known about it since my first visit to NIH. I never got around to taking care of it until just a few months ago at my VA eye specialist. He said it looks fine for now ...

Resulting "Quadriplegia"

dani
  • By dani · Posted March 31, 2007
  • 1 recommendation
  • As my previous post stated, I had surgery just days before I would have died--with a massive spinal tumor from c-2 to c-7. I woke up from surgery unable to move anything except my right arm which I beat ...

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