Recommended journals
- By Brian · Posted April 11, 2008
- 47 recommendations
- When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...
- By Walter · Posted June 20, 2008
- 19 recommendations
- Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...
- By Walter · Posted April 25, 2008
- 17 recommendations
- Hello everyone. We just added a feature that many of you have requested - a list of all of the posts that you have replied to. To get to your list, all you need to do is: 1. Sign in 2. Click "Me" in the ...
- By TeamInspire · Posted March 13, 2008
- 16 recommendations
- Hello, old friends and new. Today is a big day for us! We have made numerous improvements to your community, most that were suggestions from you. As you can see the site is very different then before ...
- By Brian · Posted May 23, 2008
- 14 recommendations
- Two months ago, when we launched Inspire 2.0, we added a group called 'Team Inspire'. We did this with the best intentions: we wanted the group to be a space for new members to get oriented, ask questions ...
- By Brian · Posted June 28, 2008
- 13 recommendations
- I am pleased to announce that we have updated Inspire to support video. You can now share a video of yourself, videos that you find inspirational or informative, and more. I've included one of myself ...
- By Brian · Posted March 13, 2008
- 12 recommendations
- I am pleased to present Inspire 2.0 -- the result of many months of fun and hard work. We have made numerous improvements to your community, the vast majority of which are ideas that came from you! We ...
- By Beth · Posted March 28, 2008
- 9 recommendations
- Hello everyone. We've been hard at work on many of the great suggestions that you've sent us. This week we've been cooking up some changes to the group home page, and hope to make them public very soon ...
- By Walter · Posted May 5, 2008
- 8 recommendations
- Hello everyone. We just added a new feature to help you follow the conversations that you are participating in. You will now get a notification whenever someone replies directly to one of your replies ...
- By Brian · Posted August 27, 2008
- 7 recommendations
- At Inspire, we think about privacy all the time. Virtually every web site has a privacy policy; you can read ours here: http://www.inspire.com/about/privacy/. But simply following the letter of a privacy ...
- By Walter · Posted June 1, 2008
- 7 recommendations
- Hello everyone. I'm writing to let you know about some long overdue improvements that we'll be making to this site's messaging system later this week. The messages section is the most frequently visited ...
- By Walter · Posted June 10, 2008
- 6 recommendations
- Hello everyone. Just a quick note to let you know that the improvements to the message system that I wrote about previously are complete. You can check them out now. You'll notice that we've grouped your ...
- By Tasha · Posted June 12, 2008
- 5 recommendations
- Greetings from TeamInspire! I'm your friendly neighborhood designer, here to tell you about some new features. You might notice that today we revamped your member homepage - https://www.inspire.com/member-home.pl ...
- By Lamariposa · Posted April 25, 2008
- 3 recommendations
- My husband was diagnosed with VHL in 1996. He recently went through his 4th surgery and is starting to have a difficult dime dealing with everything. I am as supportive as can be. However, he thinks that ...
- By RosemarieB · Posted October 18, 2008
- 2 recommendations
- While sitting at home, recovering from surgery, I keep wondering why no one has come up with a man made protein that persons with VHL can take. They know the gene that produces the tumor suppressing protein ...
- By dizzybee · Posted November 14, 2008
- 1 recommendation
- Has anyone had a PET & CT with contrast and radioactive tracer and felt sick afterwards? I had one done on 10/24 and every since then I've been very weak, nauseous and just don't feel well. I thought ...
- By AlexAnderson · Posted August 20, 2008
- 1 recommendation
- Hey, I'm Cancerkid (Actualy, It's Alex) And I'm one of the youngest ever diegnosed with VHL. That's me in the top corner on the homepage! I have a very rough story, too. At age 4 I was unable to hear ...
- By FridayThe13th · Posted April 11, 2008
- 1 recommendation
- I hate the "look".I hate the uncomfortable silence.I hate so called friends who haven't picked up the phone in a month to just say hi because "they don't know what to say".I'm the same person I was before ...
- By sgtnutz · Posted March 11, 2008
- 1 recommendation
- I have a tumor in my left eye. I've known about it since my first visit to NIH. I never got around to taking care of it until just a few months ago at my VA eye specialist. He said it looks fine for now ...
