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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Active journals
My son
- By Porq · New reply July 3, 2009
- 3 replies
- May 7th, 2009 is a day that I will never forget. It started out with that dreaded phone call at work insisting that I get home immediately. What was supposed to be a somewhat normal doctors visit for ...
Questions about Transplant?
- By joyceg98 · New reply July 2, 2009
- 3 replies
- Thinking about whether to sign that donor card at the registry of motor vehicles? Or are you in a situation where you could benefit from a donated organ? Bring your questions about transplantation to ...
thanks for support
- By teray · Posted June 29, 2009
- 0 replies
- thank you to everyone who responded. We will be better prepared with questions for our appointment in boston ...
Support
- By Lamariposa · New reply June 25, 2009
- 15 replies
- My husband was diagnosed with VHL in 1996. He recently went through his 4th surgery and is starting to have a difficult dime dealing with everything. I am as supportive as can be. However, he thinks that ...
kerry martin
- By kez02m · New reply June 25, 2009
- 6 replies
- My name is Kerry on the 3rd of december 2004 my husband lost his eye sight was rushed to hospital later he was diganosed with vhl in febuary 2005 tumors in adernals,kidneys,brain,spine eyes, lung liver ...
Questions about how drugs get approved?
- By joyceg98 · New reply June 25, 2009
- 1 reply
- I'm talking this afternoon (Wednesday) with Marlene Haffner, former head of the Orphan Drug section of the FDA. This came up relatively quickly, as we had to squeeze it into her busy schedule, but the ...
Support and Other Things
- By FridayThe13th · New reply June 24, 2009
- 2 replies
- First of all I just wanted to say thank you to everyone who replied to my last post. I think I was a little overly emotional when I posted that entry, but no it wasn't a cry for help or anything of the ...
Tornado
- By joyceg98 · New reply June 23, 2009
- 5 replies
- Well, this week I got to Practice what I've been preaching about emergency preparedness. I went to Memphis to celebrate my mother's 92nd birthday and spend some time with her and my Dad, who is 91 and ...
Share your story via video!
- By TeamInspire · New reply June 23, 2009
- 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
Pheochromocytoma/paraganglioma study
- By joyceg98 · New reply June 23, 2009
- 1 reply
- Something that may be of interest to some of you - message I received this morning. -- Joyce I am a researcher with Oxford Outcomes. We specialize in patient reported outcomes. We are currently recruiting ...
Support your group and raise awareness with badges
- By Walter · New reply June 22, 2009
- 39 replies
- Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...
My cousin
- By Sheilin · New reply June 22, 2009
- 4 replies
- How can I convince my cousin to take better care of herself? I can only do so much, but she is in constant denial. For the past 3 months I have been begging her to go and see her doctor. Being an elderly ...
Hello..!!
- By MissCaroline · New reply June 19, 2009
- 2 replies
- I´m a girl from Sweden and I have relatives with this diagnostic.My grandmother died.. Now I´m doing a work about to have a chronic desise and to be a relativ to people with cronic desise..Is there someone ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · New reply June 12, 2009
- 32 replies
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
I am excited
- By kimberly4562 · Posted June 11, 2009
- 0 replies
- I hope I win this art contest!! You can enter too, but i hope you vote for me(: http://artcontest.mind2it.com/blogs/mind 2it.html ...
Round 3!! FIGHT!
- By FridayThe13th · New reply June 9, 2009
- 15 replies
- Geez, it's been over a year since I've posted anything on here. I hope I'll stick to it this time. Procrastinate much? Anyways, journal it's that time again. Time to face the sleeping giant. Tuesday July ...
Guestbooks - An exciting addition to Inspire
- By TeamInspire · New reply June 9, 2009
- 35 replies
- Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...
Pre Implantion Genetic Diagnosis for VHL... The Decision
- By Vhl_pgd_girl · New reply June 7, 2009
- 1 reply
- So June 2009 and PGD edges closer... (this is a long one with all the background, get a cuppa or skip it and just follow my progress in bite-size, 140 character chunks on Twitter.com (VHL_PGD_GIRL) Since ...
Just a journal entry
- By Ieva · Posted June 7, 2009
- 0 replies
- Yesterday we had municipal elections. Surprisingly small number of parties aspiring for leadership in our capital- just 20. And thanks to 5% barrier only four of them made it, including the favorite (because ...
Sexism
- By Ieva · New reply June 6, 2009
- 4 replies
- Yesterday I finally obtained prescription of estradiol- just a year and four months after hysterectomy. I was rather edgy (after having been turned down by several gynecologists), but everything went ...
