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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Active journals
Losses
- By MariaKaminski · New reply August 29, 2009
- 3 replies
- Each person we let ourselves care about is just one more loss down the road. Do we not care about each other or do we give all of ouselves and live with the loss knowing we are better because we have ...
The Other Side of the Moon
- By MariaKaminski · New reply August 28, 2009
- 13 replies
- I was out on my porch swing and it was silent. No traffic, no noise, just me and the fire flies acrossed the street in the park. I looked up and noticed it was a full moon. It was a cloudy sky so there ...
thanks to everyone who has been responding!!!
- By teray · Posted August 27, 2009
- 0 replies
- Weve decided to put it in gods hands!! Tired of dealing with the doctors runnarounds. We dont seem to get anywhere!!!! Constant repeat of tests they order and then say they were a waste of time. Too much ...
thanks to all who are helping us get through this
- By teray · Posted August 25, 2009
- 0 replies
- has anybody had complications with mri dye husband went for his test today and blood pressure spiked out of control!!!! Better now but we remembered with the last pheo a doctor had said not to have dye ...
found pheo
- By teray · New reply August 25, 2009
- 5 replies
- lymphnodes on liver anyone have information told us friday at 5 ordered test for tuesday this is a second go around for hubby looking for information please i dont think it looks good regular mri found ...
Alone you'll self destruct
- By FridayThe13th · New reply August 24, 2009
- 19 replies
- I've taken a bit of time looking through other people's journals on here today. There's hope, love, and families who've been made stronger because if nothing else is shared they share an illness. Sad ...
I'M SO BORED ( and now on YouTube )
- By FridayThe13th · New reply August 17, 2009
- 4 replies
- I remember saying that I'd post a video when I had time and had told some friends I would so here it is: http://www.youtube.com/watch?v=CpxAO76Jr LY If anybody else is on YouTube let me know ...
Guestbooks are now live!
- By TeamInspire · New reply August 15, 2009
- 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
Scheduled maintenance this evening
- By TeamInspire · New reply August 12, 2009
- 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
Two years ago today...
- By JennyBlue · New reply August 5, 2009
- 3 replies
- I opened my eyes and saw a bright pink light. "What is that?" I thought, unwitting that I had said it aloud.... A voice, "What do you see, hon?" Who's voice was this? Do I know this voice? "Who are you ...
Nutrition to Enhance the Immune System
- By joyceg98 · New reply July 24, 2009
- 6 replies
- This week's interview is with Haylie Pomroy, the nutritional consultant who spoke at our Anaheim meeting in June. She is really terrific, and I know you will enjoy hearing what she has to say. Please ...
Back In Black ( Compression Socks )
- By FridayThe13th · New reply July 22, 2009
- 3 replies
- Just a little update today. Ever since my surgery I haven't really felt like being on a computer. Hopefully I'll get my post op video on YouTube soon, and yes when I do I'll post the link here. Everything ...
Heading to Maryland Sunday and Hare Krishna
- By FridayThe13th · New reply July 19, 2009
- 6 replies
- It's almost that time. Time to go get this over with. One more day at work then the infamous "VHL Vacation" I just keep reminding myself..."It is what it is". I stopped the other day to think about it ...
Too many pheos!
- By AEckerman · New reply July 17, 2009
- 6 replies
- My 10 year old son, Caleb, just had three pheos removed, for a total of 8 so far. There is only one other child with a similar history that I know of. I just wish I knew why he is getting so many. Alison ...
Did you attend the conference? Why? or Why not?
- By joyceg98 · New reply July 15, 2009
- 6 replies
- Let's talk about the pros and cons of attending a patient conference. What are the benefits? or what kept you away? We would like to learn, so that we can serve you better. http://bit.ly/14wRzy The radio ...
Jacomet on Happiness
- By joyceg98 · Posted July 15, 2009
- 0 replies
- Pierre Jacomet, a philosopher and television personality in Chile, has a new blog. http://jacomet.olivoediciones.net/ Pierre has von Hippel-Lindau, and chairs our affiliate group in Chile. He will be ...
New to this!
- By kate63 · New reply July 14, 2009
- 4 replies
- What a great idea this is. I hope to find answers regarding insurance and doctors, and also for pain management; and in return to provide inspiration with my own experiences. The best medicine, in my ...
I lived to tell the tale
- By FridayThe13th · New reply July 13, 2009
- 10 replies
- I'm still up at NiH but the computer in my room is screwed up so I hobbled my fat lil butt all the way to the library to post this. See how much I love you guys? lol ( anybody who's stayed at 3NW knows ...
support
- By teray · New reply July 13, 2009
- 6 replies
- Help my husband is living with vhl had a pheo removed 10 years ago. Its back but cant locate it. Also has a cyst in the brain is living with severe pain in arms and legs. There are days weeks months he ...
No title
- By Ieva · Posted July 7, 2009
- 0 replies
- Have not written for a while, since I was involved with bureaucrats. Ones allocated me II group of disability, but no pension (however meager) so far, since one of employees of state revenue service ...
