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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Active journals
Hemangioblastoma nightmare
- By Jankster · New reply 4:52 am
- 30 replies
- Earlier this year my husband was diagnosed with a benign brain tumor located on the brain stem about the size of a half dollar, which was removed. The neurologist told us all the risk, but said they were ...
Need information
- By lety · New reply yesterday at 9:41 am
- 4 replies
- Hi My name is Letty I was diagnosed with VHL in 2002. I have been doing MRI of my head on a yearly basis because both my dad and sister have VHL and have had tumors in the head removed. I have recently ...
Pheochromocytoma or Paraganglioma?
- By joyceg98 · Posted November 17, 2009
- 0 replies
- Oxford Outcomes has asked us to post this notice. Oxford Outcomes is conducting a qualitative research study involving interviews with pheo/para patients in order to evaluate the clarity, relevance, and ...
The beginning
- By sissy0513 · New reply November 15, 2009
- 15 replies
- Well, I was faced with having adrenal gland surgery and then found that I have tumors on both and will lose both, at 42 and a single mom this is distressing to me. I have a large amount of stress in my ...
Wishing you a good outcome
- By MaryP · New reply November 12, 2009
- 8 replies
- Like many of you, I am a sandwich VHL patient. My mother had the disease, I have it, and my daughter also has VHL. After so many tumors, and so many surgeries, I wondered if in some way I was "allowing ...
RENAL ANGIOLIPOMA ANYONE???....
- By sonia40 · New reply November 10, 2009
- 12 replies
- Hello everyone..... as you all know me for those people who are following my posts....i have been told that i have a 5cm Renal angiolipoma on my right kidney....(have not had a biopsy as yet)...i also ...
Just getting started..
- By Nannysgirl28 · New reply November 5, 2009
- 1 reply
- We are now in what you would call the "down period" of my grandmother's chemo treatments. She is actually taking them very well. Getting around on her own and eating well. We begin 3 more chemo treatments ...
Off we go again!!
- By BriannaB · New reply November 5, 2009
- 3 replies
- We just got back from my husbands appointment with the neurosurgeon, and yes he is going to have another brain surgery sometime within the next 6 months... he wants it to get a little bigger. Anyways ...
14 YRS SINCE MY BROTHER PASSED AWAY...
- By sonia40 · New reply November 4, 2009
- 13 replies
- Hello all the wonderful ladies and gents on this wonderful site.... Today is a sad day for me....today is my brothers anniversary....he passed away exactly 14yrs ago of pacreatic cancer..he was only 28yrs ...
no new nasties
- By diaryofageneticdefec · New reply November 4, 2009
- 3 replies
- Just wanted to share the good news that my annual review said, that i can come back in a year. whoo hoo ...
Inspire members featured
- By Brian · New reply November 4, 2009
- 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
A CYST ON MY OVARY....
- By sonia40 · New reply November 1, 2009
- 13 replies
- Hello everybody.... for those wonderful people who are keeping up with my posts...(LOL)...im just wondering if anyone can claryify this confusing situation....i was diagnosed with CIN1/HPV...so back in ...
HOPE ANYONE CAN HELP ME...
- By sonia40 · New reply October 26, 2009
- 8 replies
- Hello all once again as i mentioned before i am scheduled for my app in december..(re partial nephrectomy)....i just have a few symptoms that im dealing with and thought which better place to ask than ...
FINALLY GOT AN APP WITH A HOSPITAL....
- By sonia40 · New reply October 23, 2009
- 10 replies
- Hello all i am soooo excited i just had to let everyone know the wonderful news...today i received a letter from 1 of the hospitals that i was on the waiting list regarding my kidney tumor....i have an ...
Positive for VHL
- By BriannaB · New reply October 23, 2009
- 2 replies
- Right now in my family we have 5 kids that had to be tested for the VHL disease. So far 3 have come back. 2 are free and clear, but today we found out my neice is potitive for VHL. We are still awaiting ...
Pheochromocytoma
- By Joce24 · New reply October 21, 2009
- 14 replies
- Hi, I am brand new to this site. I had a pheo on the left adrenal in 2002 and had the whole gland removed (adrenalectomy) totally because they told me the chances of it recurring are slim. Guess what ...
WENT TO THE ER.....
- By sonia40 · New reply October 21, 2009
- 20 replies
- Hello to all you wonderful people and thankyou for responding my post and offering wonderful advice....as i mentioned in my post a couple of days earlier...my right kidney has been hurting that no amount ...
DCLG meeting
- By joyceg98 · Posted October 20, 2009
- 0 replies
- I'm back from Europe, now in Washington at the NCI Director's Consumer Liaison Group meeting (DCLG) -- NCI is the National Cancer Institute (US). The meetings are open, and are being webcast if you are ...
20 mile walk, 5 year survivor, Life Moves on
- By MariaKaminski · Posted October 19, 2009
- 0 replies
- I just completed my second annual 20 mile walk for breast cancer awareness. I am, just this year, a five year survivor and off all chemo. Now it's on with the show as they say, or as I would say, life ...
MY KIDNEY HURTS SO MUCH....
- By sonia40 · New reply October 17, 2009
- 6 replies
- Hello all for any of you wonderful people who have read my posts in the past will know by know bout my kidney tumor (angiolypoma)...as i mentioned before it was only found by accident through an MRI....so ...
