Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
Advances in kidney transplantation
- By joyceg98 · Posted March 6, 2009
- 1 reply
- Dr. David Sachs will join me on the Powerful Patient this coming Thursday, March 12, at 3-4 pm Eastern US time. Dr. Sachs and his colleagues have developed a method of "training" the recipient's body ...
Denied Insurance?
- By joyceg98 · Posted March 6, 2009
- 9 replies
- Hopefully you have good insurance and are finding the health care you need. If not, how difficult has it been to get insurance? I would appreciate your sharing some stories with me. Would it be a good ...
Amyloidosis Support Groups Inc. - Fundraiser
- By Muriel · Posted March 5, 2009
- 2 replies
- Amyloidosis affects all of your diseases in one way or another. In some cases amyloidosis AA (secondary) can hit RA and PA and AL amyloidosis can also hit MM and Waldenstrom patients. Plus we are all ...
Ready for an Emergency
- By joyceg98 · Posted March 4, 2009
- 2 replies
- On Thursday's radio show at the Powerful Patient we will speak with Elaine Lasoff, Director of Education for the Needham (Massachusetts) Emergency Management Association. Elaine is a nurse who specializes ...
Rare Disease Day Radio Broadcast!
- By joyceg98 · Posted February 26, 2009
- 0 replies
- Mary Dunkle, VP at NORD, will be co-hosting a radio show today with Joyce Graff, at the Powerful Patient. Thursday, Feb 26, 3-4 pm Eastern Time http://www.blogtalkradio.com/powerful-pa tient Call 347-237-4358 ...
Powerful Patient Call-In Show on Improving Quality Care
- By joyceg98 · Posted February 21, 2009
- 7 replies
- The Powerful Patient is growing and changing! We will now be able to take calls on the air! We are still working out what would be the best time to schedule the show on a regular basis. WE NEED YOUR FEEDBACK ...
dear sweet joyce
- By semperfi16 · Posted February 15, 2009
- 5 replies
- dear sweet joyce first off i would like to thank you , ive been reading everyday and bearing witness to your never ending kindness it seems that no matter where in this life one may go if you look hard ...
pancreatic or neuroendocryne
- By raymy · Posted February 10, 2009
- 15 replies
- can anyone give me advice i was diagnosed with metastatic pancreatic cancer in july 2005 and given months to live my tumour was 4cm i trial m200 and gemcetibine every moncay for 1 year still worked due ...
L IS FOR THE WAY YOU LOOK AT ME "A Love Story"
- By MariaKaminski · Posted February 5, 2009
- 0 replies
- I am in no way an expert in love. I can only tell you what I know about it from experience. I was fortunate enough to experience on of the greatest loves in my life. It has changed me forever and I will ...
Powerful Patient Radio show / Podcast
- By joyceg98 · Posted February 3, 2009
- 2 replies
- Please check out my radio show at http://powerfulpatient.org We focus on issues of interest to anyone with a complex medical condition or disability. We focus on empowering you to build a health care ...
Spinal results
- By Crazydog · Posted February 2, 2009
- 5 replies
- My son joseph has just had the results from his last brain and spinal scan. He now has another tumour in the cerebellum (as well as one in the frontal lobe) and a 2.5cm tumour in the spine to go with ...
pancreatic cyst removal
- By glennco · Posted January 27, 2009
- 0 replies
- In the summer of 2008 I developed terrible pain in my abdomen which was not going away. They discovered a pancreatic cyst in my body and tail measuring 4.2cm. I went to univ. of miami sylvester cancer ...
Stuck!
- By MariaKaminski · Posted January 25, 2009
- 2 replies
- I thought you could use a laugh so here goes. I came home from classes on Friday and I tried to get in the front screen door and I couldn't. It was stuck. I knew it wasn't locked because it doesn't lock ...
Snow
- By MariaKaminski · Posted January 19, 2009
- 4 replies
- It snowed here yesterday and we got a total of about 18 inches. I shoveled the snow and went to help the neighbors dig out as well. I was done and it was still snowing. It was so beautiful coming down ...
Auld Lang Syne
- By MariaKaminski · Posted January 12, 2009
- 4 replies
- When New Year's Eve came, I didn't know what to do. I really didn't want to spend another one alone. Nor did I want to spend another one with people and be on the outside looking in. I love my family ...
Powerful Patient - musings on life and health
- By joyceg98 · Posted January 2, 2009
- 1 reply
- I read an article today that shows a dramatic connection between what we eat and how we feel. 230 young offenders at a maximum security prison in England were enrolled in a nutrition study. Half were ...
Found research
- By adriano_ro · Posted December 14, 2008
- 3 replies
- looking for someone who can help me to find founds for my sister in love ( VHL ) romanian citizen . After 1 operation in INI institute in Hannover she was operated in Siloah Hospital for kidney tumors ...
Medications
- By Louise4 · Posted November 25, 2008
- 0 replies
- Hi every one Juste to no wath to do about the medications we have to take.Is is safe to take cold medication.I no some medication for my kidney Disease lots off them that i just dont no IF I CAN or not.I ...
Going in again
- By Rick · Posted November 24, 2008
- 7 replies
- Hey folks, it seems my hopes for SRS of the tumors in my spine were dashed. I am going in tomorrow (Tuesday 11/25) for conventional surgery to remove two at the L-4, L-5 area. I have utmost trust in my ...
Be Who You Are
- By MariaKaminski · Posted November 24, 2008
- 0 replies
- Be who you are and say what you feel, because those who mind don't matter and those who matter don't mind – Dr. Seuss Being who you are is something that many of us struggle with. We always feel we aren't ...
