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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
Did you attend the conference? Why? or Why not?
- By joyceg98 · Posted July 2, 2009
- 1 reply
- Let's talk about the pros and cons of attending a patient conference. What are the benefits? or what kept you away? We would like to learn, so that we can serve you better. http://bit.ly/14wRzy The radio ...
Heading to Maryland Sunday and Hare Krishna
- By FridayThe13th · Posted July 2, 2009
- 1 reply
- It's almost that time. Time to go get this over with. One more day at work then the infamous "VHL Vacation" I just keep reminding myself..."It is what it is". I stopped the other day to think about it ...
My son
- By Porq · Posted July 1, 2009
- 3 replies
- May 7th, 2009 is a day that I will never forget. It started out with that dreaded phone call at work insisting that I get home immediately. What was supposed to be a somewhat normal doctors visit for ...
thanks for support
- By teray · Posted June 29, 2009
- 0 replies
- thank you to everyone who responded. We will be better prepared with questions for our appointment in boston ...
support
- By teray · Posted June 24, 2009
- 5 replies
- Help my husband is living with vhl had a pheo removed 10 years ago. Its back but cant locate it. Also has a cyst in the brain is living with severe pain in arms and legs. There are days weeks months he ...
Questions about how drugs get approved?
- By joyceg98 · Posted June 24, 2009
- 1 reply
- I'm talking this afternoon (Wednesday) with Marlene Haffner, former head of the Orphan Drug section of the FDA. This came up relatively quickly, as we had to squeeze it into her busy schedule, but the ...
Support and Other Things
- By FridayThe13th · Posted June 18, 2009
- 2 replies
- First of all I just wanted to say thank you to everyone who replied to my last post. I think I was a little overly emotional when I posted that entry, but no it wasn't a cry for help or anything of the ...
Tornado
- By joyceg98 · Posted June 18, 2009
- 5 replies
- Well, this week I got to Practice what I've been preaching about emergency preparedness. I went to Memphis to celebrate my mother's 92nd birthday and spend some time with her and my Dad, who is 91 and ...
Share your story via video!
- By TeamInspire · Posted June 15, 2009
- 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
Amyloidosis Support Groups Inc.- Mayo Clinic Breast Cancer and More
- By Muriel · Posted June 15, 2009
- 0 replies
- Mayo Clinic invites patients, families and caregivers interested in breast cancer and hematologic malignancies to special dinner lectures and a wellness program at the Ritz Carlton on Amelia Island, Florida ...
I am excited
- By kimberly4562 · Posted June 11, 2009
- 0 replies
- I hope I win this art contest!! You can enter too, but i hope you vote for me(: http://artcontest.mind2it.com/blogs/mind 2it.html ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · Posted June 10, 2009
- 32 replies
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
Alone you'll self destruct
- By FridayThe13th · Posted June 7, 2009
- 16 replies
- I've taken a bit of time looking through other people's journals on here today. There's hope, love, and families who've been made stronger because if nothing else is shared they share an illness. Sad ...
Just a journal entry
- By Ieva · Posted June 7, 2009
- 0 replies
- Yesterday we had municipal elections. Surprisingly small number of parties aspiring for leadership in our capital- just 20. And thanks to 5% barrier only four of them made it, including the favorite (because ...
Pre Implantion Genetic Diagnosis for VHL... The Decision
- By Vhl_pgd_girl · Posted June 6, 2009
- 1 reply
- So June 2009 and PGD edges closer... (this is a long one with all the background, get a cuppa or skip it and just follow my progress in bite-size, 140 character chunks on Twitter.com (VHL_PGD_GIRL) Since ...
Sexism
- By Ieva · Posted June 4, 2009
- 4 replies
- Yesterday I finally obtained prescription of estradiol- just a year and four months after hysterectomy. I was rather edgy (after having been turned down by several gynecologists), but everything went ...
Are you ready for an emergency?
- By joyceg98 · Posted June 3, 2009
- 0 replies
- This week's radio show features two members of the Police and Public Health departments of the Town of Brookline, talking about what they are doing to prepare for emergencies -- everything from avian ...
Round 3!! FIGHT!
- By FridayThe13th · Posted May 30, 2009
- 15 replies
- Geez, it's been over a year since I've posted anything on here. I hope I'll stick to it this time. Procrastinate much? Anyways, journal it's that time again. Time to face the sleeping giant. Tuesday July ...
Knowledge
- By Ieva · Posted May 29, 2009
- 0 replies
- Today I went to the ophthalmologist and managed to decipher her scrawl, except recommendations for my primary care specialist. Anyway nothing dangerous for the time being however now it is clear that ...
Trouble losing weight?
- By joyceg98 · Posted May 27, 2009
- 5 replies
- Tomorrow Thursday May 28, 3 pm Eastern US time, I will be speaking with Brett Salisbury, a Certified Sports Nutritionist, about weight and health. Several times people have told me that they need to take ...
