My husband was diagnosed with VHL in 1996. He recently went through his 4th surgery and is starting to have a difficult dime dealing with everything. I am as supportive as can be. However, he thinks that because anyone who try’s to talk to him, have no clue what he is going through because we don’t have VHL. I really could use some advice on how to help him deal with this. I also have an 11 year old, and 5 year old, that I have to worry about as well. He keeps thinking that they have the disease and it is all of his fault. Any advice would be great.
Thanks Much!