Right now in my family we have 5 kids that had to be tested for the VHL disease. So far 3 have come back. 2 are free and clear, but today we found out my neice is potitive for VHL. We are still awaiting results on my two children. Its very hard to stay positive when it just never goes away. We are heading to the city for some scans my husband needs and checking on the growth of the tumor curently in his brain. Watching my husband go through what he has gone through and my brother in law now needing spinal surgery, is really freaking me out. I cannot amagine not only dealing with the stress of my husbands surgeries and his brother but now my neice and quite possibly my own children too. ( I have this sickenning feeling that my oldest son has it) I dont know how much more i can bare.
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Positive for VHL
- By BriannaB
- Posted October 22, 2009 at 4:45 pm · 2 replies
- Shared with the public
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