We just got back from my husbands appointment with the neurosurgeon, and yes he is going to have another brain surgery sometime within the next 6 months... he wants it to get a little bigger. Anyways im loosing my mind. I know there are sooooo many others on here going through the same thing, but man oh man, my husband will be having Brain surgery about the same time his brother has spinal surgery.. I live with both of them and I really dont think I can handle this. The last surgery my husband has was awful, long, and took up until now to recover.. he is still not 100%. The doctor is also a little nervous about my husbands spine as he has been numb on almost one half of his body. Were hoping that was caused by the last surgery though. Were waiting on results for my children to see if they too have VHL, we have conformation that my neice has it... she is 5. Emotionally I am drained, I dont sleep I worry, I try to be positive and put a smile on my face for everyone but part of me just wants to hide. I would never think of leaving my husband,,, i love him far to much, but the stress of me loosing him and half my other family members is just too much to bear. My friends, and my side of the family are wonderful, but im sure they are tired of hearing me talk about VHL and whatnot. I cant help it I eat, sleep and breathe it. Any advice?



