VHLhope

Hi all,

A new site for those in the UK affected by VHL has been created. VHLhope.co.uk

This site has been created by those with VHL and offer support to those in the UK only. No medical advice is given on this site.

The main reason for the site is due to previous advice that has been given, altho the advice would be correct for in the US, unfortunately the UK has a totally different health service and the advice doesnt always match what is available in this country.
Additionally a few members have found that this site has been blocked by it's employers, and as when they are available to discuss issues, they are unable to as they cannot access the site.

Everyone is welcome to the site, as previously mentioned tho, it is primarily for the UK.