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Great news about Livestrong adding VHL to it's dropdown box of types of cancer!!! This is great exposure.
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VHL and Livestrong
- By lifeandhope
- Posted June 19, 2009 at 8:38 pm · 5 replies
- In Fundraising and raising awareness
- Shared with the public
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- By SHAWN1
- Posted October 28, 2009 at 12:32 pm
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Went on livestrong and did not find the VHL link or drop down box. Oh well, it may take some time. I did go on Facebook and found the VHL groups which is awesome. I had tried before but couldn't find them, must have been doing something wrong, because I found them today. I am now a "fan" of 1 page and I also joined the VHL friends group.
You can find me on fb --Shawn Mastrantonio--hope to see you there!
- By SHAWN1
- Posted October 28, 2009 at 8:14 am
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That is awesome!! I have been asking them to add VHL as one of the diseases that they cover since I joined Livestrong.com.
I see that Alice was recognized at the Livestrong Challenge in Austin for her work is raising awareness. You can read about it on the VHL Homepage
www.vhl.org
I'm on Livestrong--user name Mastrantonio--if you want to check out the site or look me up.
Take care everyone!
PS. Big day Nov 11th--Have MRI to "monitor" hemangioblastoma in left cerebellum.
- By diaryofageneticdefec
- Posted October 25, 2009 at 4:11 am
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the website should just be
www.livestrong.com
i don't seem to be able to link to the vhl bit though
- By Beverly2
- Posted October 24, 2009 at 3:18 pm
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I can't find this on the Livestrong site. Help!
- By Ariel
- Posted June 20, 2009 at 10:42 am
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This is wonderful! I would like to post this information to the VHL group on Facebook; do you have a relevant link that I can post? Thanks so much!
Best,
Ariel
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