I have been dignosed with VHL in 1999. I took up scuba diving in 2006 and was declared fit by a Diving Medical examinor.
In June last year, it was suggested by the VHL support group in South Africa that I have a CT scan done on my abdomen just to make sure that the kidneys are clean. I have not had any discomfort or signs of problems in my abdomen.
To my horror it was confirmed that I had multiple cysts on both kidneys and pancreas ranging from 3mm to 60mm on size. I was admitted to hospital and the large tumour was removed (partial nefrectomy).
It has been 7 months since the surgery and I have recovered very well and back to all normal activities.
I also started diving in a controlled environment this past weekend.
My concern and question is this:
I will be doing a coastal diving trip this coming weekend and am worried about the boat trip out to the diving site which is normally very bumpy. Should I risk doing this dive ?
The Urologist advised that all is OK and that my life must not come to a stand still due to VHL and the surgery. The diving medical doctors though are giving me a red flag saying to wait a year.
Anyone else out there in the same situation ?




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