I hope this note finds everyone doing their best. Knowing this can be different for different people, we created a meeting with you in mind. Please come join us on the 15th Anniversary that the VHL Family Alliance has been in existence. On June 28th, just a couple of weeks away we will be holding a VHL Conference/ Meeting in Orlando, Fl, where it rains sunshine. The meeting will be from 9-5pm and dinner will follow at 6pm.
There will be some great speakers and topics. Some of which include Robotic surgery for Kidney Tumors and Pheochromocytomas, Dr Lonser from NIH, Debra Collins, Anne Fonfa on Nutrition and other therapies, a Clinical Psychologist having different sessions for adults with VHL, spouses, significant others, caregivers, children with and without VHL and of course friends. Gary understands where we are coming from because Gary also has VHL. Joyce Graff will be there as well as Gale Lugo, a number of Board members and most importantly those of you that can make it. See http://www.vhl.org/meetings/meet2008/orlando.php for additional information.
Oh, I almost forgot we are also having a Silent Auction.
The price of the meeting never did go up. Shhhh.
Hope to see you there!
Gale Lugo
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