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Hello everyone,
I am looking for a New VHL Doctor in Doylestown Pa Area. Just moved here. I am seeing Dr. Shipkin (Neurologist) who has had experience with VHL, but I need a Dr. to see on a regular basis.
I have had tumors removed from my brian, spine, and kidney. Still have lesions and cysts on other kidney, pancreas and spine.
Hi and welcome to the area. All my Drs (except my GP) are in Phila. A good place for you to start might be Dr Katherine Nathanson. There is a VHL "group" of Drs at "University of Pennsylania" in Philadelphia I see Dr Nathanson there. I've been going to NIH, but one must have a local team. I've been dealing with this all my life in this area and it's worth the trip to Philly
Take care,
Jacki
Jacki1,
Thank you for your info. I have attepted contact with the VHL group at HUP and never recieved a reply. I will try contacting Dr. Nathanson directly.
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