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I am curious: 6 years ago when i was at NIH, i was diagnosed with so many tumors, including in the lungs (small ones). Over the years, i have been on top of all my scans (brain, spine, abdomen), but have not done anything to monitor what NIH said about my lungs 6 years ago. It is almost time for me to get my spine scanned. When the thoracic spine is scanned, can it also pick up any abnormalities in the lungs? How concerned should i be?
I have over 20 tumor like spots in my lungs. Both of my lungs are full of them. They first found them when they did a CT of my abdomen and saw changes in the bases of my lungs. Then they ordered a CT of my lungs and found that they were through out both of my lungs. My doc sent me to 2 pulmonolgists who had no idea what they were. The look like pulmonary infiltrates, which is what you get with pneumonia or like what one would get with exposure to a toxin. I am now followed at NIH by Dr Schrump, who is head of the Oncology Pulmonary department. He thinks the tumors are really blood vessel fed cysts, and not a problem at this time. I have CT scans and PET scans of my lungs every 3 months there. I am also seeing Dr Linehan, Urology Department head. He says that cysts in the lungs are fairly common but the research does not talk about them much. He does not think they are a problem for most people if they stay small.
Do NOT every have them biopsied, as they could bleed every where and really cause a problem.
Mine don't really show up much (only a few do) on MRIs. CT scans show them and they also glow very bright on PET scans. That is why NIH is watching mine.
So, that is my experience. I asked a similar question a few years ago. You can search it at the top of this website and read about what others have said.
Best of health to us all,
Tina
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