Join now

Already a member? Sign in

Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

corner corner corner

Looking for pediatric vascular neurosurgeon

Kberri310
0 Recommendations

I'm hoping for some help. My 12 yr old has VHL with multipal spinal cord hemangioblastomas. I'm very confused and overwhelmed with researching for the best vascular neurosurgeon to guide us. We live in Rhode Island and are willing to travel for the right specialist. Please share your referrals/stories if you have had surgery or radiation tx with a pediatric neurosurgeon. I have a list already, and could use personal experiences to help refine it.
Thank you

Explore topics in this discussion:

Surgery

2 replies

vickie2327

My kids were fortunate enough to have a wonderful
neurosurgeon at Children's Hospital Los Angeles,
his name is J. Gordon McComb, M.D. I'm not sure if he is still in practice, but I would not have had another neurosurgeon for my daughter and son.
He was always very positive and had a caring and supportive bedside manner. I once "caught" him holding my daughter's hand and praying for her when things were not looking very good. It must have worked, she began to improve. If this wonderful man is still in practice, please find him.
I'll keep your family in my prayers, I was in your position at one time. Stay strong.

Kberri310

Thank you Vickie. I'm glad to hear that your children are doing well.

Add to the discussion

Don't have an Inspire account? Join now!

Forgot password?

Group leaders

You