Join now

Already a member? Sign in

Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

corner corner corner

Help!!

Deededell
0 Recommendations

I feel so alone and am hoping that their is someone out there that can help me feel better. I got the next slap in the face this week when my blood sugars went above 350. Now I have type 2 diabeties. I was so shocked. Has anyone else had the problems that I have had since dx. I cannot sleep, diabeties, I am far too weak to walk long distance, weight loss is a joke, the fact that my prior issues with the nervous system and RSD and stuff is getting tougher. Does anyone else feel like I do. Cause I feel like I should be perfectly normal and doing everything I can and want to. Would love feedback.

Thank you
Deededell

Explore topics in this discussion:

Cancer Surgery Depression Diabetes

5 replies

AlexAnderson

hi. I'm so sorry, but I don't know about anything having to do with diabeties. But you are in my prayers.

SHAWN1

Deededell,
First, I want you to know that you are not alone as we are all here for eachother. I don't have diabetes but I know through people that do that at first it can be very frustrating until your insulin levels get regulated. The best advice that I have for you is to listen to your body and don't over do it.

Best wishes and keep us posted.

TinaDiane

Hi,
I am a certified diabetes educator and have VHL. I urge you to go to an Endocrinologist (MD who specializes in organs that produce hormones-- my endo is the guy who found my VHL) and see a Certified diabetes educator so you can follow a food plan. YOU DO NOT HAVE TO LOSE WEIGHT. You just need to get your blood sugars under control with maybe pills and carb counting. YOU CAN do it. I have diabetes in my family and with all the tumors I have on my pancreas I'm sure I will get it before I die. There are a lot of worse things to have but it is all overwhelming......
Let me know how you are doing, I would love to be a friend.

joyceg98

What a great offer from TinaDiane! I hope you two can make progress.

Diabetes is a common problem in the general population, mostly because of diets rich in fats and sugars. As TinaDiane says, the immediate goal is not to lose weight, but to get that sugar number under control. That means learning what affects it, and modifying your diet. You might lose some weight in the doing, but that's a bonus. The destructive force in your body is having too much sugar in your blood.

For people with VHL, diabetes is sometimes a consequence of something going on in your pancreas. It's the pancreas that secretes insulin. Sometimes those VHL cysts in the pancreas can be sitting on one of the tubules that should be delivering insulin to your digestive system, almost like stepping on a hose. You should be sure to check with your endocrinologist -- not only about the blood sugar, but also about the pancreas. Is there a cyst or tumor in there that needs watching?

Few doctors are really savvy about VHL in the pancreas. Don't hesitate to ask us to organize a second opinon for you from one of the world's top experts on VHL in the pancreas, Dr. Libutti or Dr. Hammel. Dr. Libutti is moving this winter to New York, where he will be setting up a brand new cancer center -- a great honor and challenge for him! He assures me that he will continue to be willing to see anyone with VHL in the pancreas at his new place at Albert Einstein Medical Center in New York. He will also be at NIH one day a week for some months during the transition.

Dr. Hammel is in France, and more convenient to Europeans.

Both a wonderful people, and have done outstanding research on the pancreas. Both have always been happy to review scans and provide input for you and your local doctor, to make sure you get the treatment you need, and that you NOT get too much treatment! Local doctors often over-react to VHL tumors of the pancreas, and may suggest more surgery than is really needed.

Besides, you can help enhance our knowledge of VHL in the pancreas by adding your case to those already being studied by these two top-docs.

Write to us if you need us.

Best wishes,
Joyce Graff
director@vhl.org

rockinelmo

Hi -- first, I'm so sorry about your diagnosis. Next, you can live well with this. I have been Type II for what seems like a hundred years and I battle the meds to lose weight, but I have. I'm here because I hit a slump and need some support. The biggest help for me was finding a doctor I could partner with. She not only treats the diabetes, she treats me. She watches carefully for signs of depression, which are common in newly diagnosed diabetics. She talks to me and monitors everything. I don't know what would have happened to me without her. And, you need to learn about your disease. Go the to www.diabetes.org -- American Diabetes Association. It's a great website and has loads of info. And you can always talk to me at rockinelmo54@aol.com. I'm older than dirt and have been through most of it, if not all!!!

Add to the discussion

Don't have an Inspire account? Join now!

Forgot password?

Group leaders

You