Ear Tumors, and New to all this!?!

heatherbacon
0 Recommendations

It all started with the ear tumor, paraganglioma is what my Doctor said about 8 years ago. After 3 surgeries on my right ear, two surgeries on my neck to get rid of caroid body tumors,and a recent adrenal gland tumor I found myself saying "something weird is going on." Has anyone ever had a Paraganglioma, and it turned out to be a ELST? I am going through a series of test right now, but I have done my own research, and found ya'll. I guess it will take weeks to get the results back and im kinda on the edge of my seat. Any advice or words of wisdom while i wait would be great!!!

1 reply

donnab
  • By donnab
  • Posted October 3, 2008 at 9:34 pm

Hi and welcome! I can't answer your ELST question, but just wanted to say good job for getting on top of this and being on the road to figure out what is going on.

Recurring pheo's/paragaglioma's can be caused by several different genetic conditions, so exploring that area first to see if that is what's going on is a great move on your part.

Knowing what is causing these recurring tumors will be a great help to you in controling and monitoring what is happening with your body and to keep yourself healthy.

I wish you the best of luck and hope you find out soon what is causing this.

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