As i told. there is NO magic medicine for us. The things that we can do is check our body regularly.
Taking special arrangement on our daily menu.
There are quite some herbs recommended to taken by VHL patient in this chatroom. Here are my s recomendation which have scientific research support.
1/ ginseng,
content Ginsenoside Rg3 , anti-angiogenesis function proved,
But, there are some rules for taking ginseng .
a/ stop taking during period( woman )
b/ stop eating carrot and radish
c/ No ginseng for asthma patient
2/ Laminaria ( kind of seaweed)
content laminain sulPhate，LAMS)，
anti-angiogenesis proved.
you can put it in soup instead of making tea.
3/ Bean
content genistein which mentioned in VHL handbook
4/ beehive
content propolis which is anti-tumour proved,
you can find propolis tablet in all pharmacy.
.........to be continue.
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Chinese herb medicine for VHL
- By wilson-hk
- Posted May 14, 2009 at 5:34 am · 6 replies
- In Medical treatments that worked for me
- Shared with the public
6 replies
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- By pupa
- Posted May 14, 2009 at 4:19 pm
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I am ready to go tothe health food store YESTERDAY
but before I gi what actually should I buy? Al;so The vhl has affected my eyes So what magic herb could HELP?!
Please let me know I am going to a health food store? or should I have someone who knows make up a potion of chinese herb extracts, becauseI do know of a dr, who has been successful in helping people with other alinments
- By wilson-hk
- Posted May 15, 2009 at 12:56 am
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there are a quite some resaerch of Ginsenoside Rg3 with eye tumour in chinese . and this is work for mice. if you are fixed, conditionsstated above. you can take all of them.
if you know a qualified chinese doctor, it is no harm to take some advice fr. him. but, beared in mind. chinese medicine cannot cure your tumour in few days.
- By joyceg98
- Posted May 18, 2009 at 2:07 pm
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For those of you ready to rush out and buy something at the health food store, please listen to the current show at powerfulpatient.org. Americans spend an enormous amount of money on Complementary and Alternative Medicine (CAM), but usually without the thought and analysis that Wilson is urging here.
It is best to ANALYZE your situation first, to determine what you NEED, not just take herb-of-the-week as recommended in some magazine.
It is also CRITICAL to tell your doctor -- even if you don't normally discuss this with your general practitionery, you MUST tell the surgeon and the anesthesiologist at least several days before any surgery. Why early? Because you may need to discontinue some medicines -- including aspirin and tylenol -- for several days before surgery.
There is a very good article at WebMD about this problem. More than 70% of Americans take CAM and don't tell their doctors. This is a very risky thing to be doing. I'm not saying that the CAM is bad -- it might be very good -- but that it might also interact in the wrong way with prescription or over-the-counter medicines, or with other herbs you are taking, or with the anesthesia during surgery.
See http://www.webmd.com/news/20090416/surgery-patients-unaware-of-herbal-risk
See also http://powerfulpatient.org
Best wishes,
Joyce
- By wilson-hk
- Posted May 18, 2009 at 2:38 pm
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Good point.
I stopped to take all herbs and medicine, seven days before my surgery. Some chinese herbs, such as ginseng, will increase blood flow which is very dangereous for surgery.
As i said. MUST consult a qualified chinese doctor before taking multi- recipe herb ( 2 or more defference herb or CAM using together ) treatment.
today, I have talk to a CEO of the largest anti-tumour website in PRC. I've proposed to set up a Chinese VHL group. He seem to be very interesting about this.
I will see him again in Beijing next week I. will keep you informed.
- By joyceg98
- Posted May 20, 2009 at 11:11 pm
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Terrific, Wilson! Thank you.
For anyone not familiar with the acronym, PRC = People's Republic of China (mainland China).
Best wishes,
Joyce
- By TinaDiane
- Posted May 21, 2009 at 10:21 am
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I am always open to alternative medicine and herbal medicine has been around the longest. I agree with Wilson and Joyce to make sure your doctors are aware of what you are doing and that you go to a very knowledgeable Chinese doctor before trying any herbal medicine. Anyone with adrenal/kidney disease
or high blood pressure must be VERY careful with herbs, I have decided against it as I am without adrenal glands and my body is on a careful regimen of prescribed medication. Our kidneys and our adrenal glands are VERY important in blood pressure regulation and some herbs (like black licorice root) can raise our blood pressure to a dangerous level. My doctor at a very large medical center in Los Angeles was quite unaware of this when I was trying some herbs several years ago. So my advice, BE VERY CAREFUL.
Blessings,
Tina
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