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Cerebellum tumor

westieslove
0 Recommendations

I just got the results of my latest MRI. I have a 2.8 x1.6 x1.9 cm mass in my right cerebellum. I am new to Richmond Va so I am going to a neurosurgeon that my PCP recommended on Monday for a consult. As I am looking at some info, I see that some hemangiomablastomas have been treated with the newer sterotactic radiation. VCU has the Trilogy System that they use. Do any of you have any information on these systems?
I am 62 and thought I was "out of the woods" for brain tumors. I have had a pheo in 1981 and RCC with a partial in 1998. Any info would be greatly appreciated.
Westies love

Explore topics in this discussion:

Surgery Brain tumors Hemangioblastoma

1 reply

joyceg98

The generic term for using focused beams of radiation to treat a tumor is "stereotactic radiation". Be sure to read our page at http://vhl.org/stereo and go through the list of Questions to Ask Your Doctor BEFORE you make up your mind.

One of the top neurosurgeons for VHL in the world is Dr. Edward H. Oldfield
Dept. of Neuro Surgery, 3rd floor
Box 800212 Health System
Charlottesville VA
22908-0212
W: 434-982-0059
Fax: 434-924-5894

I would see him before you make a decision about stereotactic radiosurgery. As you will read on our pages, treating a hemangioblastoma is much more tricky and risky than treating most kinds of brain tumors, so most radiation oncologists have little or no experience with them.

It is often easier (really!) to do open surgery. The procedure is less pleasant, but the recovery is often better and faster than with radiation. All generalizations are by definition wrong, so what you really need are consultations with the right physicians, and the right list of questions to ask about your own particular situation.

All best wishes,
Joyce

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