As most of you know, this site has made a lot of changes and we, the VHLFA have also made changes. We have made a number of changes to help support our VHL Family, to better serve your needs and continue supporting you on line.
There are almost 500 people on this VHL Family Alliance group from around the world. We also noticed this site is pretty quiet. Do you read this, does it go to your spam folder, are you having difficulty, do you need time to search the changes? Please let us know. We cannot do anything if we don't know the concern.
If you are reading this, can you please let us know what you think? We want to make sure we are reaching out to everyone. Just hit reply and tell us what you think, even just to let us know it's getting to your inbox. You can reply to this message or send me an email. I can be reached at: us-fl@vhl.org
PS You need to sign in to hit reply. If that is a problem, send me a message at
us-fl@vhl.org
Be well,
Gale Lugo, VHLFA
Your on line support team



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