Adreanal Insufficiency No More

VHLDNA
0 Recommendations

I had my bilateral adrenalectomy in 1986 and have been on hydrocortisone ever since. My current endocrinologist who I have been seeing for about one year has been concerned with the low dose I take. He questioned my need for the hydrocotisone since my labs are so good. So yesterday I took a High Dose Cortrosyn Stimulation Test. Well this morning I got a phone call stating that my test was NORMAL and instructing me to discontinue the hydrocortisone. I will have more blood work in 10 days to make sure everything is still normal. I'm still in disbelief and wondering if anyone else has a simular story.

3 replies

Deededell
  • By Deededell
  • Posted August 25, 2007 at 4:17 am

I feel so blessed to have found you. In June 2006, I had an bilateral adreanalectommy due to pheochromocytomas on each side I have been on hydrocortisone as much as 30mg a day and I take .5 mg of Flournef. I have never gotten back on my feet. I am still as week as a kittlen. Can you please share with me what all they have done with you. I cannot stand this feeling of "UGH". Looking forward to your knowledge and thank you.

Blessings,
Deededell

rcscott65
  • By rcscott65
  • Posted August 26, 2007 at 10:42 pm

How is this possible if you had both glands removed? Where do they think the adrenaline is coming from that is ample enough to supply your body?

My son is 11 and had his right gland 100% removed and 90% of his left. He is on 15mg per day so far. He does not feel tired or have problems if he isn't right on time. Were you experiencing this as well?

Rhonda Scott

VHLDNA
  • By VHLDNA
  • Posted September 10, 2007 at 10:38 pm

Sorry I have taken so long to reply I have been busy with work. I haven't been told why or how this is possible. I just know that it is. Like your son I didn't feel tired or have any problems. I have done nothing special to achieve this outcome. It's been about 3 weeks that I have been med free. I feel GREAT. Some of the side affects from the meds are beginning to go away. I will keep everyone informed of any changes in my situation. If you or anyone else has any questions I will be happy to answer them.

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