The Vascular Disease Foundation Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Not Sure What I Hope For

KALONAKINI
  • By KALONAKINI · New reply 4:45 am
  • Journal · 16 replies
  • I have my appt. with the VS this Friday - it's one year since the last procedure, 20 months since the second Aortic Bifemoral Bypass at Stanford and 2 1/2 years since the original Bypass. As some of you ...

Central Nervous System Vasculitis

Michael1234
  • By Michael1234 · New reply 2:20 am
  • Discussion in General discussion · 3 replies
  • My son had 3 strokes and was diagnosed with CNSV 5 years ago. He had treatments of cyclophosphimide and prednizone in low dose, then pulses, then high dose treatments, all those treatments failed. However ...

I’m still the Boss of Me

Renas
  • By Renas · Posted 1:35 am
  • Journal · 0 replies
  • Dear Doctor: Uh, HELLO!!!!! I’M STILL IN HERE. Unfortunately, my ability to communicate verbally has been mildly affected by stroke, but I am still just as smart as I was 6 months ago (on the inside ...

Gabapetin, PN, PAD, etc.

ladyzoey
  • By ladyzoey · New reply yesterday at 5:31 pm
  • Journal · 21 replies
  • Long boring vent, etc. Finally went to family doctor yesterday because the top of my little toe was sore as hell & had been hurting for way too long. Dr. said it was a "corn" & not infected & told me ...

Dad in hospital

principessa123
  • By principessa123 · New reply yesterday at 2:51 pm
  • Discussion in Peripheral arterial disease (PAD) · 8 replies
  • Hi all, I've recently signed up to this sight in a bid to understand better about PAD. My is currently in hospital and had an artery bypass operation on his right leg a couple of weeks ago, he is also ...

VS Questions, etc.

ladyzoey
  • By ladyzoey · New reply yesterday at 2:05 pm
  • Discussion in Peripheral arterial disease (PAD) · 5 replies
  • Isn't a VS supposed to check the bottom of your feet? Strange, but my VS never has looked at the bottom of my feet. I have a few tiny little sores on the bottom of both feet that need to be looked at ...

Where did this come from?

Jomcc
  • By Jomcc · New reply May 22, 2013
  • Discussion in Peripheral arterial disease (PAD) · 1 reply
  • My dad had this disease and unfortunately did not have access to the treatments which we have today so he died quite young. My brother and I have both had aortabifemoral bypass . His surgeon in Ireland ...

Prednisone

Kylee91003
  • By Kylee91003 · New reply May 22, 2013
  • Discussion in Vasculitis · 4 replies
  • Hi I just got my biopsy report back and it confirmed vasilitis the problem is cant take steroids because I am allergic so how can they help me I am so scared any suggestion ...

What Supplements do you take for CVI ?

Dancelegs
  • By Dancelegs · New reply May 22, 2013
  • Discussion in Chronic venous insufficiency (CVI) · 11 replies
  • I've been taking Vita D in 5000 unit doses because my Endocrinologist says almost all Americans are deficient. My blood test revealed that I was very low! And I didn't even know it ! That's why blood ...

New column: “'Live Because:' Living a fuller life with chronic illness"

John2
  • By John2 · Posted May 21, 2013
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire Dear members, I'm writing to share with you a new column on the Stanford University School of Medicine "Scope" blog, titled, “'Live Because:' Living ...

New to cvi

Bmiller5992
  • By Bmiller5992 · New reply May 19, 2013
  • Discussion in Chronic venous insufficiency (CVI) · 9 replies
  • I am newly diagnosed with CVI. I have been doing a lot of reading of course but would love to know how others are dealing with this condition in every day life. My job is working on my feet six hours ...

Anyone feel like this? I can not STAND up for long

Dancelegs
  • By Dancelegs · New reply May 18, 2013
  • Discussion in Chronic venous insufficiency (CVI) · 13 replies
  • I'm looking to hear from others with this CVI diagnosis as to how it affects their daily life. It keeps me from standing in line or standing in the kitchen to fix food. It's a building pressure in my ...

Five million

Brian
  • By Brian · New reply May 18, 2013
  • Journal · 205 replies
  • Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

going on 3 weeks

leesann
  • By leesann · New reply May 16, 2013
  • Journal · 3 replies
  • Well going on 3 weeks and still have swollen toes ankle and foot going to the drs on Thursday hoping that he doesn't give me any bad news . I'm a little nervous but I guess it is what it is right ...

leucytoclastic vasculitis

laughingnana
  • By laughingnana · New reply May 15, 2013
  • Discussion in General discussion · 2 replies
  • Wondering if anyone in this group has Leukocytoclastic vasculitis? laughingnana ...

Problems after GI Bleed

Chelle1962
  • By Chelle1962 · Posted May 15, 2013
  • Discussion in General discussion · 0 replies
  • Ok so I was on 6 - 7 mg a day of Coumadin for my arterial clotting disease. I have now had 3 GI bleeds in 6 months. Unknown why I get the bleeds. My scopes are all negative. When I get the bleeds my INR ...

Aorta bilateral femoral bypass

Kjessupk5
  • By Kjessupk5 · New reply May 14, 2013
  • Discussion in General discussion · 6 replies
  • My husband had this surgery 2 1/2 weeks ago and continues to be in severe pain. He said it hurts in his abdomen like an ulcer. He is miserable. Who has had this surgery and how long did it take for the ...

PAD new at this

littlesal
  • By littlesal · New reply May 9, 2013
  • Discussion in Peripheral arterial disease (PAD) · 32 replies
  • Hi. After having severe cramps go through my leg for months, I finally talked to my doctors PA. He said it sounded like Claudication. When I went to the Vasular Surgeon, they confirmed it. I have a 70 ...

Where, Oh, Where Has My Ice Cream Gone

KALONAKINI
  • By KALONAKINI · New reply May 8, 2013
  • Journal · 20 replies
  • I bought a house. Oh, ok - I bought a mobile home. Important note: a mobile home is a house - not a trailer. I only made that mistake once - at bingo - in my new mobile home park - surrounded by dozens ...

Tickly cough watery eyes

Jomcc
  • By Jomcc · Posted May 6, 2013
  • Discussion in Carotid artery disease · 0 replies
  • Hi all. I had both carotid endarterectomies in November and December. Healed very well but now I have developed a tickly cough in my throat which comes on very suddenly and randomly at one side or the ...

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Discussion topics

vdf: Thanks again to all those that participated at this year’s #VESSEL12. For questions or information missed, visit us at http://t.co/os2Oh1eg

vdf: #VESSEL12 is wrapping up. Thanks to all who participated & special thanks to Joe Thiesmann & all of our presenters! @Theismann7

vdf: Meeting at 8:30am ET for questions & discussion session http://t.co/os2Oh1eg #VESSEL12

vdf: Final topic today comes from @harvardmed: Creating Synergy between #Vascular Research & Public Awareness: IDing Challenges/Opps #VESSEL12

vdf: At 2pm ET, Professor of #Surgery at @ualbany: Remember to V-Aware: Empowering Individuals about #Vascular Disease #VESSEL12

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The Vascular Disease Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Vascular Disease Foundation, an Inspire trusted partner.