Join now

Already a member? Sign in

Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

corner corner corner

Discussions

Advanced Prostate Cancer treatment options?

mg2009
  • By mg2009 · Posted yesterday at 10:50 am
  • In Treatment options · 2 replies
  • My dad was recently diagnosed with prostate cancer. We were first told that it looked confined to the prostate on scans. There was some area of interest in his right pelvic bone but the radiologist suggested ...

Now that I'm on ADT, what do I do at the gym?

JB71
  • By JB71 · Posted November 21, 2009
  • In Exercise and nutrition · 2 replies
  • Many of you are recommending exercise during ADT treatment (Casodex & Lupron). This could include a lot of walking and going to a gym on a regular bases. As a result of these suggestions I made an appointment ...

Vote for Us TOO on FaceBook to receive funding!

pcbcgirl
  • By pcbcgirl · Posted November 18, 2009
  • In Advocacy · 0 replies
  • JPMorgan Chase’s charitable arm has pledged to dole out $5-million to grass-roots charities chosen by Facebook users, USA Today reports. Participants in the Chase Community Giving contest can vote through ...

Understanding the psa in follow up care

dgnort
  • By dgnort · Posted November 17, 2009
  • In Recurrence / advanced disease · 5 replies
  • Our PCa journal is already on record on this site but a brief overview is...AT age 57 my husband was diagnosed with PCa in April 07 with PSA of 22, 12-15 biopsies taken all cancerous with most 5 or 6 ...

Mammograms, PSAs

billr
  • By billr · Posted November 17, 2009
  • In Advocacy · 2 replies
  • It looks like the same kind of nonsense is now being given to us about breast cancer that we heard about prostate cancer last summer. As those of us who have had PCa know, the PSA was a key to catching ...

Rising PSA on Active Surveillance

cvnc
  • By cvnc · Posted November 14, 2009
  • In Active surveillance · 13 replies
  • Would like to pass some current numbers with others to see if this is the end of the road for my AS. Diagnosed in May 2009 with a PSA of 7.7. Original diagnosis was 1 core positive at 5% and a Gleason ...

Rising PSA on Active Surveillance

cvnc
  • By cvnc · Posted November 14, 2009
  • In Active surveillance · 2 replies
  • Would like to pass some current numbers with others to see if this is the end of the road for my AS. Diagnosed in May 2009 with a PSA of 7.7. Original diagnosis was 1 core positive at 5% and a Gleason ...

Can we reduce side-effects from the drugs ?

JB71
  • By JB71 · Posted November 13, 2009
  • In Managing side effects · 3 replies
  • Started Casodex ( 50mg. for 30 days) last week and the brochure that came with it mentions possible side- effects of nausea, diarrhea, itching and feeling weak. The only change I have noticed so far and ...

Researching HIFU as a treatment option

ftlang09
  • By ftlang09 · Posted November 13, 2009
  • In Treatment options · 0 replies
  • I was recently diagnosed with PCa with 5 of the 6 areas from my biopsy being positive. My most recent PSA level was 9.73 which dates back to Sept of this year. The biopsy was conducted on Sept 30th 2009 ...

Seeking Medical advocate

anoif46
  • By anoif46 · Posted November 13, 2009
  • In Newly diagnosed · 10 replies
  • Newly diagnosed with Gleason 7, 3 of 15 cores positive, PSA of 4.8, would like to know if anyone has used or knows of a medical advocate in New York City. It's all so overwhelming I would like to get ...

Hard to decide the right treatment

KlondikeGeoff
  • By KlondikeGeoff · Posted November 12, 2009
  • In Treatment options · 7 replies
  • I had prostate cancer eight years ago and had external radiation treatment for 8 weeks, which took care of it. For years I had PSAs around 0.5, but not so long ago it rose to 1.1 and three months later ...

What do support groups offer ?

JB71
  • By JB71 · Posted November 11, 2009
  • In Wives, family, friends and caregivers · 5 replies
  • Several weeks ago I looked into possibly joining some sort of prostate support group and I was delighted to learn that there is one, right here in my home town. They meet on a second Tuesday, once a month ...

PSA use and alleged PCa over-detection

az4peaks
  • By az4peaks · Posted November 11, 2009
  • In Screening and early detection · 1 reply
  • Those interested in the subject of PSA testing and alleged Prostate Cancer (PCa) over-diagnosis, will find this presentation by Dr. William Catalona of Northwestern University Medical Center, to be informative ...

First prostate biopsy jitters

drJL
  • By drJL · Posted November 10, 2009
  • In Screening and early detection · 13 replies
  • Age 53, PSA for several years was upper 2's, then low 3's. Summer 2008 it went to 4.1; Oct 09 jumped again to 6.3, asymptomatic, so I'm heading for a biopsy next week. My uro was suggested by my MD ("If ...

PCa and walking

billr
  • By billr · Posted November 9, 2009
  • In Treatment options · 0 replies
  • Today I ran across this on Real Age.com. I hope you can access the article without joining the group: http://www.realage.com/tips/how-walking- affects-a-common-cancer While this is not new information ...

PSA controversy commentary

az4peaks
  • By az4peaks · Posted November 4, 2009
  • In Advocacy · 4 replies
  • Commentary on the PSA* controversy by John E. Holliday, FACMPE Critics of PSA screening for Prostate Cancer (PCa) generally base that opposition on the view that over-treatment of PCa is substantial and ...

Actor Hopper diagnosed with PCa

az4peaks
  • By az4peaks · Posted October 30, 2009
  • In Newly diagnosed · 9 replies
  • Another celebrity with PCa - John@newPCa.org (aka) az4peaks Los Angeles - Actor Dennis Hopper is suffering from prostate cancer and has cancelled all engagements to focus on his treatment, his manager ...

Color Doppler Ultrasound a useful tool in PC staging and diagonosing

johnt
  • By johnt · Posted October 27, 2009
  • In Active surveillance · 15 replies
  • High Resolution Color Doppler Ultrasound is an important tool in PC. It analyzes the blood flow that agressive tumors need to support themselves and using a side by side screen of high resolution ultrasound ...

Let the American Cancer Society know you disagree about screening

Goldenbuff
  • By Goldenbuff · Posted October 25, 2009
  • In Screening and early detection · 12 replies
  • The CEO of the American Cancer Society recently issued a email clarifying their position on screening after their Chief Medical Officer created a stir after comments about screening. However John R. Seffrin ...

Composer diagnosed with PCa

az4peaks
  • By az4peaks · Posted October 25, 2009
  • In Newly diagnosed · 6 replies
  • The following brief information was abstracted from a more extensive AP release. - John@newPCa.org (aka) az4peaks LONDON: Composer Andrew Lloyd Webber has been diagnosed with prostate cancer, his spokeswoman ...

Group leaders

Us TOO Education Tools & Resources

Get Involved with Us TOO

You