I have stage IV prostate cancer, with metastases to pelvic lymph glands, pelvis, sacrum, spine and possibly things starting up in one lung, kidneys and liver which are too small to diagnose as yet.
My initial PSA was 744, went down to 10, then up to 12.6 and the last PSA was 6.2 !2 our of 12 with the biopsy showed an agressive cancer, and Gleason 8.
I don't know how the bone mets progress, what to expect regarding pain, and when radiation is used, and the effects of the radiation.
I was on Firmagon injections, and just switched to Lupron, and also monthly Xgeva injections and daily bicalutamide tablets. Tramadol for pain, and Ativan for the massive anxiety that permeates every waking moment.
I'd like to hear from guys with bone mets---both good and bad experiences. I need to be more prepared for what lies ahead.