Us TOO Prostate Cancer Support Community

The Us TOO Prostate Cancer Support Community connects patients, families, friends and caregivers to enhance the quality of life for all those affected by prostate cancer... More about this group

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Freaked out

By dcoleman21 · New reply yesterday at 8:33 pm
Discussion in Treatment options · 3 replies
Hello, I am a 59 yr. old with prostate cancer with a Gleason of 8, all biopsies samples showed cancer, also a spot in my hip, biopsy was positive. Doctors at Loma Linda want cut all of the prostrate ...

Recently Diagnosed

By uofmhockey · New reply yesterday at 4:41 pm
Discussion in Newly diagnosed · 5 replies
I was diagnosed with PC about a month ago. My Gleason score is 3+3 = 6. I had a 22 core biopsy with one core being positive for PC. PSA seems to go up then down and then back up. From 2009 until 3/16 ...

Provenge #3

By dearheart · New reply yesterday at 10:09 am
Journal · 18 replies
Pretty uneventful. Good trip there, competent assistant, tingly lips again. Wife was sick and had to stay in hotel. Provenge infusion was like a family meeting. Now we wait ...

Sex after RP

By carrytherock2 · New reply May 15, 2012
Discussion in Prostate cancer and intimacy · 10 replies
My wife asked me to post an update for all you wives and men recently diagnosed with PCa. I had Robot Surgery for PCa on Dec. 5, 2011 (6 months ago). Gleason 7 with perineural invasion, cancer in a seminal ...

IMRT vs Proton

By Mjbsc · New reply May 15, 2012
Discussion in Treatment options · 14 replies
I was diagnosed in late March, PSA had risen for three years to 5.87, first gleason was 3+3, had a second opinion by Bostwich, came out 3 + 4, but I have only three samples positive of 15 and 20% involvment ...

PROSTATE CANCER

By Pebbless · Posted May 15, 2012
Discussion in Treatment options · 0 replies
Has anyone heard of ProAct Therapy for incontinence. It has been done outside of the United States. I would like some information about this procedure. Thanks. Have a great day ...

Predicting PSA recurrence vs. persistence

By RH1970 · Posted May 13, 2012
Discussion in Recurrence / advanced disease · 0 replies
Had RRP in March and will be coming up on my first PSA test soon.. I've been reading some about PSA recurrence vs. PSA persistence. As I understand it, recurrence is when the PSA drops to an undetectable ...

leakage

By Verdi · New reply May 13, 2012
Discussion in Managing side effects · 42 replies
I have had my prostate removed Gleason 7 and after removal have +margin meaning I have some left. My biggest issue is the leakage and is driving me crazy, I hate the smell of urine and work in an office ...

Are they all dry orgasm's?

By StevoB · New reply May 13, 2012
Discussion in Prostate cancer and intimacy · 48 replies
I haven't seen this topic anywhere on this forum. Are there any treatments that keep the prostate able to make fluid and for guys to still have wet ejaculations??? Trying to keep the verbage respectful ...

free e-book to all prostate cancer patients

By selfhelp · New reply May 13, 2012
Discussion in Newly diagnosed · 14 replies
As a retired VA psychologist with a research background I carefully studied the literature on PC treatment. Two findings stood out - (1) all major treatments are equally effective and (2) they differ ...

Anyone had RP long ago? (5 years +)

By LoverOfWomen · New reply May 10, 2012
Discussion in Prostate cancer and intimacy · 16 replies
Hello fellow Gladiators I think we need a thread with information on the long-term sexual development after RP for those who intend to stay alive for a long time. It would be very helpful to hear from ...

6 week Journal

By leer34 · New reply May 10, 2012
Journal · 1 reply
We have had several messages asking for an update. Sadly, not much new to report, as everything is pretty much NORMAL. But that's good news! it's been about 5 weeks since surgery. Bill has been off pads ...

1st Biopsy...to go under or not ?

By tjw316 · New reply May 10, 2012
Discussion in Treatment options · 19 replies
Hello All and Happy Sunday to you! My hubby is having his first biopsy soon and I was hoping to get some feedback from those that went under anesthesia and those that went the Dr. office route. Do you ...

Lupron & Casodex

By dstack · New reply May 10, 2012
Discussion in Treatment options · 7 replies
It appears that I will be starting Lupron & Casodex soon. I am interested in connecting with those who have had experience with these drugs ...

brachtherapy side effects

By johns74 · New reply May 9, 2012
Discussion in Managing side effects · 10 replies
I'm 74 years old ,and had 71 seeds iodine 125 planted on 12/20/2011. my psa is down to 0.9 as of 3/23/2012, which is good. i have a difficult time getting my urine to start ,only at nite , and have small ...

PROVANGE PATIENTS HOW GOES IT

By john376 · New reply May 7, 2012
Journal · 44 replies
I would like to hear from any patients presently experiencing the vaccine Provenge. This will probably be one of my options in the near future, and I am interested in hearing how it is helping others ...

No chemo since December

By davydorite · New reply May 7, 2012
Discussion in Treatment options · 7 replies
I completed my second round of chemo Dec 2. Have had two PSA tests since, the last was 4.x. The next PSA test will be June. So appreciate all your prayers that it will be low again! Those of you who may ...

Adjuvant Radiation

By Spiderman · New reply May 7, 2012
Discussion in Treatment options · 2 replies
I'm having radiation (IMRT/IGRT) due to rising PSA after surgery. Since there was cancer in the seminal vesicle, they are also targeting the back door a bit (if you know what I mean). This is causing ...

Free call-in Support Group this Monday evening.

By johnteisberg · Posted May 6, 2012
Discussion in Local support group leaders · 0 replies
Free call-in Support Group this Monday evening. Having prostate cancer is a frightening and weird journey. It's your journey and you don't have to go it completely alone. If you have prostate cancer you ...

Informative site

By gramof6 · New reply May 5, 2012
Discussion in Newly diagnosed · 2 replies
I am sure many of you have already seen this but I just learned of it and it was extremely helpful to us - the newly diagnosed. www.webmd.com/prostate-cancer/ss/slidesh ow-prostate-cancer-overview and ...

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About this community

The Us TOO Prostate Cancer Support Community connects patients, families, friends and caregivers to enhance the quality of life for all those affected by prostate cancer. This community is sponsored by Us TOO International Prostate Cancer Education & Support Network, an Inspire trusted partner.