The Us TOO Prostate Cancer Support Community connects patients, families, friends and caregivers to enhance the quality of life for all those affected by prostate cancer... More about this group

Focal Laser Ablation patients

1177025
  • By 1177025 · New reply yesterday at 11:48 pm
  • Discussion in Treatment options · 580 replies
  • I had a successful Focal Laser Ablation treatment on January 14, 2013 at the Sperling Prostate Center in Manhattan, New York. I am interested in grouping all of us into one forum to make it easier to ...

Dana Farber

willda109
  • By willda109 · New reply yesterday at 11:09 pm
  • Discussion in Treatment options · 6 replies
  • Anybody have any experience with Dana Farber in Boston and Dr Phillip Kantoff? I'm going there in mid-May for a consult after being referred by my Oncologist, Dr. Christina Prillaman of Williamsburg ...

PSA down to .1 after 1st Lupron shot

Haliday
  • By Haliday · New reply yesterday at 10:13 pm
  • Discussion in Recurrence / advanced disease · 24 replies
  • We will learn more at med onc appointment on Wednesday but blood test has PSA down to .1 after first Lupron shot. That's down from 147 in 4 months (it dropped to 39 after one month of Casodex). We assume ...

How Selenium and Vitamin E Increase Prostate Risk

dave205
  • By dave205 · New reply yesterday at 9:29 pm
  • Discussion in Active surveillance · 27 replies
  • How Selenium and Vitamin E Increase Prostate Risk http://www.ustoo.org/PDFs/HotSheets/HotS heet042014.pdf ...

BIOPS CAN, AND DO, CAUSE UNQUANTIFIED LASTING DAMAGE?

rhudhach
  • By rhudhach · Posted yesterday at 5:20 pm
  • Discussion in Active surveillance · 0 replies
  • In response to an earlier discussion, http://www.inspire.com/groups/us-too-pro state-cancer/discussion/psa-whole-nos-vs -decimals/, Explorer08 made the following comments on April 5: “ @ rhudhach: fascinating ...

Provenge and Eosinophils

Kayakbob
  • By Kayakbob · Posted yesterday at 5:16 pm
  • Discussion in Treatment options · 0 replies
  • (continued from Ready to start Provenge - any advice thread) Completed Provenge treatment on 4-4-14, went quite well. Went to see dr. last Monday 4-14 re general weakness & other SE's, and had blood work ...

Ready to start Provenge - any advice?

Kayakbob
  • By Kayakbob · New reply yesterday at 5:09 pm
  • Discussion in Treatment options · 48 replies
  • Just received authorization for Provenge after a long appeals process - I should be starting in early March, if all goes according to plans. Any advice from those who have already undergone this treatment ...

New Targeted Radiotherapy

GL8wmets
  • By GL8wmets · New reply yesterday at 2:36 pm
  • Discussion in Clinical trials · 26 replies
  • This could be very significant. http://www.pcf.org/site/c.leJRIROrEpH/b. 8922409/k.8A41/ Moving_the_Dial_to_Cure_Can_Targeted_Rad iotherapy_actually_eradicate_tumors_in_m en_with_advanced_prostate_cancer.htm ...

disappearing bone mets

ryguy119
  • By ryguy119 · New reply yesterday at 1:30 pm
  • Discussion in Recurrence / advanced disease · 36 replies
  • My recent bone scan on 4/4/14 showed complete healing of 3 out of my 4 bone lesions. The 4th one is also shrinking fast according to my Doctors. Dr. Charles Myers is an amazing Doctor who thinks outside ...

Prostate Biopsy Complications

BlueBird3291
  • By BlueBird3291 · New reply yesterday at 11:22 am
  • Discussion in Prostate cancer and intimacy · 8 replies
  • Most men will feel discomfort and soreness in the area on which the biopsy was performed. A proportion of men will feel severe discomfort and pain. Most prostate biopsies are accompanied by bleeding in ...

Two and One Half Years Past Brachytherapy

DC61
  • By DC61 · New reply yesterday at 10:38 am
  • Discussion in Treatment options · 4 replies
  • Today is exactly Thirty months since I had brachy for GS6 PSA 5.1 .PCa. Visit with my Oncologist two weeks ago. And today with my urologist PSA down to .19. Yesterday was my birthday So I got a great ...

We’re home. 1,632 miles – 5 states – 8 days – warmth - golf.

Katuha
  • By Katuha · New reply April 18, 2014
  • Journal · 31 replies
  • I spend a lot of time on my computer because I’m retired and I obviously don’t have anything better to do right now. If spring ever comes, maybe I’ll find something else to do. Just before we left, I ...

News You Can Use from Us TOO

Us_TOO_International
  • By Us_TOO_International · New reply April 18, 2014
  • Journal · 1 reply
  • Here's the most recent collection of prostate cancer articles distributed by Us TOO as News You Can Use. http://www.ustooevents.org/site/MessageV iewer?dlv_id=15201&em_id=12802.0 ...

Erections Post-Surgery

RickRed52
  • By RickRed52 · New reply April 18, 2014
  • Discussion in Managing side effects · 32 replies
  • I have a poll on my website: http://www.whereisyourprostate.com/Forum s.html Men who've had surgery were asked about their sex life following surgery. I was shocked to discover that only 1% of the men ...

USPSTF Recommendation of NO PSA Screening - Here's something you can do

mazdaguy
  • By mazdaguy · Posted April 18, 2014
  • Discussion in Screening and early detection · 0 replies
  • A few months ago, US Senator Jeff Sessions from Alabama introduced Senate Resolution 251 calling for the United States Preventive Services Task Force (USPSTF) to reevaluate the recommendation that men ...

Options and Treatments

lbriley45
  • By lbriley45 · New reply April 18, 2014
  • Discussion in Treatment options · 4 replies
  • My brother is 53 years old. He had prostate surgery last January, 2013 which left him in a wheelchair. He began radiation treatment sometime in July, 2013. He was struck by car in December, 2013 as he ...

Testosterone supplementation and prostate cancer - Session Highlights

dave205
  • By dave205 · New reply April 18, 2014
  • Discussion in Recurrence / advanced disease · 4 replies
  • Testosterone supplementation and prostate cancer - Session Highlights Published on 14 April 2014 STOCKHOLM, SWEDEN (UroToday.com) - Dr. G.R. Dohle presented a snapshot of the EAU guidelines on testosterone ...

MRI SCAN AND E COIL

BobSJupiter58
  • By BobSJupiter58 · New reply April 18, 2014
  • Discussion in Screening and early detection · 2 replies
  • I HAD AN MRI SCAN ABOUT 3 MONTHS AFTER MY BIOPSY [FEB 2012] WAS POSITIVE FOR PCa THE CLINIC I WENT TO DID NOT USE A RECTAL eCOIL. THEY DID REPORT THAT I DID HAVE EXTRACAPSULAR PROSTATE CARCINOMA . I SPOKE ...

Does Medicare cover 3T MRI?

dmdunca
  • By dmdunca · New reply April 18, 2014
  • Discussion in Newly diagnosed · 2 replies
  • I am wondering what experiences other Medicare patients have had when getting 3T MRIs done. We have a Plan F Medigap plan with AARP(UHC). My husband has only had a TRUS type biopsy so far, and after all ...

3T MRI Guided Trus Vs 3D-PMB

joebuffalo
  • By joebuffalo · New reply April 17, 2014
  • Discussion in Newly diagnosed · 3 replies
  • Had a 1.5T MRI fused truss biopsy and 2 core with a gleason 3+3 were found 5% However my PSA is 10.4 and this puts my PSA density at 0.3 Was looking at what to do next and came across literature that ...

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The Us TOO Prostate Cancer Support Community connects patients, families, friends and caregivers to enhance the quality of life for all those affected by prostate cancer. This community is sponsored by Us TOO International Prostate Cancer Education & Support Network, an Inspire trusted partner.