Us TOO Prostate Cancer Support Community

The Us TOO Prostate Cancer Support Community connects patients, families, friends and caregivers to enhance the quality of life for all those affected by prostate cancer... More about this group

PSA from 5000 to 0.3

By starlite · New reply 3:08 am
Discussion in Active surveillance · 1 reply
When my husband was diagnosed, Sept 2011, with stage 4 prostate cancer his PSA was over 5000. He Urologist started him on Casodex which gave my husband relief for the constant bone pain within two days ...

Focal Laser Ablation patients

By 1177025 · New reply 1:26 am
Discussion in Treatment options · 66 replies
I had a successful Focal Laser Ablation treatment on January 14, 2013 at the Sperling Prostate Center in Manhattan, New York. I am interested in grouping all of us into one forum to make it easier to ...

Updated list of locations that offer focal laser ablation

By dave205 · New reply 1:25 am
Discussion in Treatment options · 1 reply
The following are some of the locations that indicate they offer focal laser ablation: Emory University Hospital 1364 Clifton Road NE Atlanta, GA 30322 Dr. Sheri Nour 404-712-1868 http://www.radiology.emory.edu/uploads/m ...

Surgery over

By LauraJB · New reply 12:58 am
Discussion in Wives, family, friends and caregivers · 9 replies
Husband is now in recovery. Waiting to see him. Dr. said it went well but can't give any concrete answers until pathologist looks. We knew dr. would be removing at least one of the nerves. And he only ...

Sparing nerves

By jamesklein321 · New reply 12:19 am
Discussion in Treatment options · 1 reply
Just diagnosed. 3+3, 7 of 12 one at 43% rest under 15%. 50 yrs old. Does anyone know the the % of times the nerves are saved in surgery? 10% 20% etc...Thanks ...

Active Surveillance

By dave205 · New reply yesterday at 7:25 pm
Discussion in Active surveillance · 6 replies
Active Surveillance By: Jeff Turner, MD Prostate Cancer Communication / Spring 2013 • www.paactusa.org Patients must keep in mind that active surveillance has now effectively evolved as an excellent alternative ...

New Viagra Web Site

By Samw1918 · New reply yesterday at 5:53 pm
Discussion in Prostate cancer and intimacy · 20 replies
Pfizer has launched a new website with the purpose of allowing men to buy "real" viagra online. This is supposedly their attempt to fight counterfeiting. The drug, however, will still cost you an arm ...

PIN (low-grade) - do some prevention?

By albedo1 · New reply yesterday at 4:19 pm
Discussion in Screening and early detection · 6 replies
- Due to BPH symptoms and severe post void residual (PVR) I passed last Dec. both Urodynamic (pressure-flow) and Cystoscopy tests. - I did a Bipolar-TURP last January to prevent worsening bladder condition ...

FDA Approves New Late Stage Prostate Cancer Drug

By jpm84092 · New reply yesterday at 1:16 pm
Discussion in Treatment options · 2 replies
In an FDA press release today (5-15-13) FDA announced their fast track approval of a new Prostate Cancer Treatment drug intended for men with castration resistant cancers that have spread to the bones ...

rectal coil mri

By nov1 · New reply yesterday at 12:06 pm
Journal · 18 replies
hi guys-i'm having a rectal coil mri in a few weeks-can anybody tell me what to expect?pain level?etc thanks for your help joel n ...

Starting to stress...

By LauraJB · New reply yesterday at 10:58 am
Discussion in Wives, family, friends and caregivers · 21 replies
My husband is scheduled for robotic surgery on Thursday. He was doing okay. Until he watched a video his doctor gave him a link for. It was basically explaining what prostate cancer is, what will happen ...

Second opinion of needle biopsy path report

By JayWalsh · New reply yesterday at 10:15 am
Discussion in Newly diagnosed · 8 replies
The first path report of my biopsy showed low grade cancer. Most books I've read insist that patients get a second opinion on the biopsy, preferably at a high volume/quality facility or teaching university ...

Thankfulness

By mark415 · New reply yesterday at 9:31 am
Discussion in Treatment options · 4 replies
I am now 15 mo post robotic removal, today I got my recent PSA test results in preparation for my next follow up visit with my doc, and once again, 3rd time since Srgy, it came back as <0.1, which means ...

Surgery Tomorrow

By LauraJB · New reply yesterday at 7:09 am
Discussion in Wives, family, friends and caregivers · 14 replies
Just need prayers and good vibes sent our way. Please no posts about rethinking our decision ...

Sex and Prostate Cancer -- Books

By CharlesCasio · New reply May 16, 2013
Discussion in Prostate cancer and intimacy · 3 replies
I hope this booklist is useful to others who are wondering: . . . What can I expect? . . . What can I do about it? I'd welcome additions from others. I'm including the Amazon.com purchase URL's. Some ...

Stage 3 and so many questions

By Tim1965 · New reply May 16, 2013
Discussion in Treatment options · 37 replies
I'm 48 years old and was just diagnosed with PC stage 3. My PSA was 12.7 after being checked during a routine physical. My Gleason scores 5 -11 positive. Left side 4+4 28% (4mm) 4+3 69% (9mm) 4+3 85 ...

Week 1 Update Recurrent Prostate Concerns

By Kennycm · New reply May 16, 2013
Journal · 6 replies
Waiting for the hammer to fall is probably a lot worse than the reality. Had my first Lupron Depot shot last Friday and have been on Casodex for 10 days and still do not feel many side affects. I keep ...

Beating Prostate Cancer with Hormonal Therapy

By dave205 · New reply May 16, 2013
Discussion in Recurrence / advanced disease · 1 reply
By Charles E. (Snuffy) Myers, M.D., Founder and Medical Director, The American Institute for Diseases of the Prostate, Charlottesville, VA Reprinted from PCRI Insights May, 2007 v 10.2 Editor’s Note ...

Five million

By Brian · New reply May 16, 2013
Journal · 204 replies
Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

Provenge is not available in Australia

By Wallaby · New reply May 16, 2013
Journal · 7 replies
I am a 67 year old male who has been living with Metastasised prostate cancer for around 8 years now. I have had the Braechy radiation therapy and am currently on hormone treatment. My PSA is low 4.0 ...

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About this community

The Us TOO Prostate Cancer Support Community connects patients, families, friends and caregivers to enhance the quality of life for all those affected by prostate cancer. This community is sponsored by Us TOO International Prostate Cancer Education & Support Network, an Inspire trusted partner.