Us TOO Prostate Cancer Support Community

The Us TOO Prostate Cancer Support Community connects patients, families, friends and caregivers to enhance the quality of life for all those affected by prostate cancer... More about this group

rectal coil mri

By nov1 · New reply 12:17 am
Journal · 35 replies
hi guys-i'm having a rectal coil mri in a few weeks-can anybody tell me what to expect?pain level?etc thanks for your help joel n ...

Desire and Function

By watchful · New reply yesterday at 11:17 pm
Discussion in Prostate cancer and intimacy · 4 replies
I am 27 months out from R.P. Gleason 3-4 .."nerve sparing " robotic..The good news is that my p.s.a is thus far negligible .... The bad news is that sexual desire and function are extremely low. My partner ...

cancer w mets

By bruce15 · New reply yesterday at 11:10 pm
Journal · 2 replies
wasted over. 1.5 years on hormone therapy visa -vi my urologist which did nothing but allow my cancer to mestastise into hips, and now rib cage,spine my new oncologist recommended zytiga. but as i,m on ...

Surgery over

By LauraJB · New reply yesterday at 10:16 pm
Discussion in Wives, family, friends and caregivers · 22 replies
Husband is now in recovery. Waiting to see him. Dr. said it went well but can't give any concrete answers until pathologist looks. We knew dr. would be removing at least one of the nerves. And he only ...

Low grade Low volume Question concerning TRT

By Toflyanytime · Posted yesterday at 9:41 pm
Discussion in Newly diagnosed · 0 replies
I have been recently diagnosed, Gleason score of 6, 3+3, 1 core out of 14, less than 5%, anterior core. I suffer from debilitating low TRT, barely able to make it through the day. I have been off TRT ...

Looking for the Possitive

By SeniorBiebs · New reply yesterday at 9:39 pm
Discussion in Recurrence / advanced disease · 25 replies
I have advanced PCa with bone mets for over two years now. Have had orchiectomy, radiation X 3, chemo with Taxotere, and just started Zytiga. Have read lots of negative/side effect-type reports and would ...

Wearing Cunningham clamp

By sbbwriter · New reply yesterday at 7:53 pm
Discussion in Managing side effects · 5 replies
Had robotic surgery over two years ago with good results. I'm cancer free and nerves were spared. No need for ED drugs. However, I have not regained continence. I have been averaging about four pads a ...

Surgery?

By braall62 · New reply yesterday at 7:27 pm
Discussion in Newly diagnosed · 11 replies
Im a 50 yo, recently diagnosed with prostate cancer, 3 positive out of 12, gleason 6, psa 6.6, no family history never smoked in good health no symptoms. Was wondering about having the surgery or surveillance ...

Active Surveillance

By dave205 · New reply yesterday at 4:38 pm
Discussion in Active surveillance · 16 replies
Active Surveillance By: Jeff Turner, MD Prostate Cancer Communication / Spring 2013 • www.paactusa.org Patients must keep in mind that active surveillance has now effectively evolved as an excellent alternative ...

Dattoli Centre

By regant · New reply yesterday at 3:19 pm
Discussion in Treatment options · 3 replies
Has anyone been treated at the Dattoli Centre in Sarasota florida ...

Second opinion of needle biopsy path report

By JayWalsh · New reply yesterday at 12:20 pm
Discussion in Newly diagnosed · 14 replies
The first path report of my biopsy showed low grade cancer. Most books I've read insist that patients get a second opinion on the biopsy, preferably at a high volume/quality facility or teaching university ...

Day 2 post op

By LauraJB · New reply yesterday at 12:03 pm
Discussion in Wives, family, friends and caregivers · 2 replies
Hubby is moving around a bit more. Two walks outside today and planning a third before bed.Tires easily and naps often. Still on liquid diet and a bit of nausea after eating. Gas pains the worst part ...

Anterior Prostate Cancers (APC) – The Hidden Cancer

By dave205 · New reply yesterday at 11:48 am
Discussion in Screening and early detection · 3 replies
Most techniques for detecting prostate cancer, e.g. DRE, TRUS-guided biopsy and endorectal-coil MRI, rely on a transrectal approach for diagnosis. Cancers within the anterior prostate can be difficult ...

PSA from 5000 to 0.3

By starlite · New reply yesterday at 11:11 am
Discussion in Active surveillance · 11 replies
When my husband was diagnosed, Sept 2011, with stage 4 prostate cancer his PSA was over 5000. He Urologist started him on Casodex which gave my husband relief for the constant bone pain within two days ...

cyber knife versus surgery

By uncray · New reply yesterday at 10:33 am
Discussion in Recurrence / advanced disease · 4 replies
Hi, My husband has had a robotic prostectomy in 2009. In 2010 he had salvage radition after in PSA went to 0.3 . It then went down to 0.1. he has been doing welll until january when it started to go up ...

PSA

By franc63 · New reply yesterday at 9:41 am
Discussion in Prostate cancer and intimacy · 3 replies
I had Brachi early February this year. At that stage my PSA count was 2.65. During this week I had another PSA done. Result 4.3. Is there a need for any concern ...

prostate cancer in the lymph node

By uncray · Posted yesterday at 9:30 am
Discussion in Recurrence / advanced disease · 0 replies
has anyone had treatment with the cyberknife on lymph nodes ...

treatment regimen for post robotic prostatectomy ED

By alllan · New reply yesterday at 9:06 am
Discussion in Prostate cancer and intimacy · 2 replies
I am 59 and 2 months post robotic prostatectomy with both nerves spared. After about 3 weeks I was put on 4 weeks of Levitra (10 -20 mg daily) as I had been taking it for ED prior to surgery. Although ...

Catheter

By LauraJB · New reply yesterday at 12:06 am
Discussion in Wives, family, friends and caregivers · 2 replies
Just noticed that there is a small amount of blood in husband's bag. He is wearing his leg bag and I have the night bag hanging in shower, it is emptied but small amount of urine is left in it and I can ...

1 more embarrassing question

By LauraJB · New reply May 19, 2013
Discussion in Wives, family, friends and caregivers · 2 replies
So surgery was on Thursday. Husband has not eaten solid since Tuesday. Taking colace. It started working early this a.m. (Sunday)but too well. If he lies in bed he has an accident..is this normal? Sitting ...

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About this community

The Us TOO Prostate Cancer Support Community connects patients, families, friends and caregivers to enhance the quality of life for all those affected by prostate cancer. This community is sponsored by Us TOO International Prostate Cancer Education & Support Network, an Inspire trusted partner.