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I have McArdle Syndrome and would like to meet one other person in the world who also has this condition. While my condition is a mild form and only life-threatening if I do not watch myself, I would like to know if anyone knows of any advancements or medical studies that I could benefit from.
Any help would be greatly appreciated.
Neil Pickard
52 years old, french,I have McArdle Syndrome too. And like you, I dont know any medical traitment. Il live with. And it is sometime difficult, however when something else happed.
Sorry, but I dont speak a real good english
Richard Beugné
Hello there i am not sure if there is any clinics that help with this syndrome. My boyfriend of 4 years has McArdle's and he takes care of the syndrome by watching his exercise and drinking a lot of water. Now we found out about 2 weeks ago that he also has Diabetes. Now he is not able to eat really anything and the medicine that he is on for his diabetes could make the McArdle's flare up. Not sure what to do yet. If you guys here of anything new to try please let me know. If you have any questions about how he handles having McArdle's email him at sublimity@email.com and his name is Chad.
Amber Wright
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