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I need some advise about my treatment.. how many times is a good thing? trying to start third round of 48 weeks of HELL!
Saturday, November 21, 2009
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hep c
- By perryb
- Posted May 30, 2009 at 10:22 am · 14 replies
- In Infectious diseases
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- By polishgirl
- Posted May 31, 2009 at 6:47 pm
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you dont give much info on why doc is doing it again, what stage is your liver, geno 1's are hard to clear but I have heard of people that have done treatment more than 4 times, if your doc thinks you should do it go for it, if you can wait on better drugs thats your decision
- By perryb
- Posted May 31, 2009 at 10:32 pm
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well i have had the hep at least 30 years, i am geno 1a, so far my liver is in fair shape and trying to decide if this new infergen will do anything better.... I just know that with in the first two months i was ready to jump off a bridge, blow my brains out, cut my own throat? I just get crazy on the stuff?
- By HeatherJ
- Posted June 2, 2009 at 9:16 pm
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Hi :)
I was just diagnosed with Hep C about 2 weeks ago. It's a bit overwhelming to say the least. I am going for an ultrasound tomorrow a.m. and then to see my doctor next week to discuss the results. I'm praying that my liver is in good condition. I had a heart attack last October and the doctor's couldn't figure out why. I didn't have any of the things that cause heart attacks and low and behold while I was looking up Hep c information on the web I came across an article that Hep c can cause clogging of your arteries. So bingo now I know why I had the heart attack. I have no idea how long I've had the hep c virus but I do know that I was with some looser guy about twenty five years ago so I think I must have got it from him. I'll never know really. I have a 10 year old daughter whom I'm going to have tested. Lord I pray she doesn't have it. I'm holding onto the hope that my liver is in fair shape so that I can hold off on treatment as long as possible considering the horror stories I've heard about the medication. Plus I don't know how these medications will interfere with heart medications. It's all so scary. I was told I have geno type 1 also. My viral load was only 887,000 but they say that count doesn't really have anything to do with how much liver damage that could have already been caused. The waiting for the results is what is killing me. I do know one thing, if it's possible to hold off on treatment I will do that. Wait... They are coming out with a couple new medications in the next few years that have a higher success rate. I'd love to wait until then. I did talk to a woman who's daughter had treatment and had geno type 1 and it worked for her and the only sickness she felt was morning sickness. So I guess it all depends on the person.
How much damage do you have to your liver? I'm 45 years old and just got used to dealing with the heart attack issue and now this....
Heather
- By Hippiechick
- Posted June 3, 2009 at 10:52 am
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hi heather,it sounds like you're keeping it together so far :) i found out 3 months ago after giving plasma,i balled my eyes out everyday for a month straight,i seem good now,i dont think about my hep much at all unless i get the foggybrain. that i have hep,if its from a tattoo ,that would be 14 yrs ago. i refused biopsy/treatment,dont know if ive made the right choice but it was my choice. i went in youtube and browsing under hep c,i found a guy in there names Lloyd wright and im pretty much following his suggestios,i also get liver formula ll,from him,i sure hope its helping things plus i take milkthistle twice aday.for the most part i feel great but i get really irritating depression,its weird because i'll feel a warn sensation threw me amd whammooo im depressed,no reason just plain depressed :( but then it goes away as fast as it came,i just take long walks with my dog!!!
are you doing biopsy?
- By Hippiechick
- Posted June 3, 2009 at 10:53 am
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are you saying this will be the third time your doing treatment?
- By Hippiechick
- Posted June 3, 2009 at 10:57 am
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hi heather,it sounds like you're keeping it together so far :) i found out 3 months ago after giving plasma,i balled my eyes out everyday for a month straight,i seem good now,i dont think about my hep much at all unless i get the foggybrain. that i have hep,if its from a tattoo ,that would be 14 yrs ago. i refused biopsy/treatment,dont know if ive made the right choice but it was my choice. i went in youtube and browsing under hep c,i found a guy in there names Lloyd wright and im pretty much following his suggestios,i also get liver formula ll,from him,i sure hope its helping things plus i take milkthistle twice aday.for the most part i feel great but i get really irritating depression,its weird because i'll feel a warn sensation threw me amd whammooo im depressed,no reason just plain depressed :( but then it goes away as fast as it came,i just take long walks with my dog!!! i cant believe you had a heart attack,hope you are doing ok now!!! i wonder what exactly hep is doing that may cause the heart attack,hmmm. you will be in my prayers,i promise!!!
are you doing biopsy?
- By HeatherJ
- Posted June 3, 2009 at 10:23 pm
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Hey, yeah it is very depressing. Depending on what th doctor tells me regarding my ultrasound results. The guy that did the ultrasound did tell me that there was nothing that jumped out at him so I take it that my liver looks pretty healthy. They're not suppose to tell you anything but I think he wanted to put my mind at ease a little because I'm so upset about it. If he's right and my liver is in good shape I'm going to hold off on treatment. I just know something better will come out in a few years and I'll wait until then. Who knows. I might be one of the lucky few that this disease doesn't really effect their liver and I'm just a carrier. Time will tell. I'm just trying to stay positive. I can't afford to get upset and start up my heart issue again ugh! I don't know about the liver biopsy either. If the ultrasound doesn't show anything I don't see the point to it. I go next week to see the doctor. I'm looking into getting a second opinion also because I found out that I have this with the clinic downtown. I just don't have much faith in them. Maybe prejudice to say but that's how I feel.
Anytime you're having a meltdown just send me a note. I'll help you the best I can :)
Heather
- By Hippiechick
- Posted June 3, 2009 at 10:44 pm
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who's doing your ultrasound,my liver doc said he wont do it,he wants a biopsy. everyone ive talk to are doing altrasounds,why cant i get one? im so upset about this. im glad you are feeling better and youre so right about staying possitive. i get up in the morning and take a 1 hr long walk,i feel so good when i do that,keeps the spirits high :) ok well you take care and keep me posted ok...you have a wonderful week!
- By HeatherJ
- Posted June 21, 2009 at 9:18 pm
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Hey Hippiechick, Getting nervous. Going to see the doctor tomorrow to find out my ultrasound results. God I hope there's no liver damage. I know they're probably going to want me to get a biopsy but I really don't want to. I ordered the liver II from Lloyd also and I also ordered the oxymatrine. Supposed to be a super duper virus killer. Also taking milk thistle which I'm a little nervous taking with my heart meds. but so far so good I feel fine with it. I've also started drinking the dandelion root tea. There's soo many other supplements and herbs tht Lloyd recommends but I'll go broke trying to buy them all. Hopefully, I'm picking the best of the litter that will help me. We'll see how it goes. Wish me luck tomorrow...
- By perryb
- Posted June 23, 2009 at 8:26 pm
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I am 44 and have had hep c at least 30 years. My Mother died last Aug 4th from liver failure. My oldest brother has hep c and my 4 yr old daughter also.. I feel better after i get that medicine out of my system. That is why i want to know how many times is a good thing.
- By perryb
- Posted June 23, 2009 at 8:29 pm
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yes this is my third time through treatment.. i took it all the way through two times
- By Hippiechick
- Posted June 23, 2009 at 10:25 pm
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why have you done treatment 3 times now,if you didnt respond i thought that that means its not going to work,hmmm?
- By Hippiechick
- Posted June 23, 2009 at 10:28 pm
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you are 44 youve had this 30 yrs,wow...how are you doing so far perry?
- By Hippiechick
- Posted June 23, 2009 at 10:34 pm
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let me know wat happens ok,i'll be thinking about you :) hey,this oxymatrine,are you taking it? im always afraid to try drugs in fear that i will have a bad reation.
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