Already a member? Sign in
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
ive been noticing since i found out i have it,theres not alot of focus on hep c.you'd think after pam anderson came out with hers that people would be a lil more relaxed about this subject...they wont find a cure unless its talked about...wats the problem...
hi hippiechick,
it's liz checking in with you to give moral support and to share one answer to your question: please know that you're NEVER alone.
i haven't learned a lot about what you're dealing with but am growing to understand at least a couple of things. one:: we ALL are surviving and thriving with SOMEthing whether it's spoken, written or not, and two:: we can ALL use a little more support in our lives!
so, here's to you and your life...here's to you and your reaching out on this forum...here's to the, believe me, tons of people who've read your post, responded to you in their hearts without ever typing a syllable, and enjoyed your dancing hippiechick logo :) :) :).
therapeutic laughter's my thing and please, check out my profile to see my health and wellness interests, too!
luv ya'
lizK
good moring liz :)
thanks for stopping in to throw a fresh boquet of flowers at me,lol they smell great!
Hey Hippie chick
I don't come on as often as I use to, I am an ex cancer patient, thats how I found this site, and everyone is great! Have made a some good friends off this site.
As for Hep C my sister has it and the doc said she would die of old age before hep c did anything to her. She was diagnosed at about 30 and is now 56yrs old.
Other than she never drinks achohol since diagnosis, she lives her life normal. She blames being a bit heavy on it though lol. She looked into the treatment and decided the side effects were not worth it. Thats all I know about it, and I know several folks who tried the treatment and and they did not finish because of the effects, so good luck, and most of all don't worry, diseases love worriers and it can wreak havoc on your body to worry. So be happy!
Denimite@verizon.net
Hello hippychick,
No in no way are you alone. There are many of us, and I had heard from several when I first joined this site. I had not visited in quite some time as the orginal group seemed to not stay here for long due to other obligations and or lack of interest. I stopped in a couple of weeks ago and thought the situation might be the same. Thank you for opening a new channel.
I found out of my hep C about 2 years ago in April 2007. I even had a long term <11 yrs> end due to my condition. But, since then, I have found great friends and a support network that helps me through the low spots we all have in life.
I probably contracted my hep 30+ yrs ago and found out by accident during a routine physical. I am not sure how I got it but figure it was during my wild years of the 70's.
I have elected not to go for treatments as I feel no ill effects and see no reason to tear my system down and take the chance of excellerating the effects. I have lived a full live with no regrets so if I die tomorrow I will die happy. That is meant as a positive remark not a negative one so please understand.
I can always use another friend so if anyone wants to friend me and open private discussions I don't mind.
Jim
Hippy Chick ya i feel the same way.I've had this for 25 + years end stages for I'm only 47 It gets really hard at times since I did nothing bad to catch this. I got it from an X wife. They don"t focus on this and nobody wants to hear about it.Mostly cause we don"t look sick till the late stages so people just don"t believe you feel so bad.The shots were hell,but I would go though it again if I thought it would help all this because she used my razor in in the shower.Hell of a thing. I'm in groups and join all I can to get the word out. I'll keep trying to get herd lots of clinical trials but remember their in it for the money that's why nobody cares it's very slow but deadly It's up to us Gary
hi jim,
thanks for finding me wow,i didnt think there was anyone out there lol,that wanted to share their story.
so,youve had yours for a while and you said you went threw treatment? did you respond? you should see how i eat since i got this news not quite a month ago,i was a bit of a healthy eater but now i even eat beets,i love them w/butter of course but no,i use to hate beets but since i heard what they do for the liver i eat them twice aweek. what i did was just ask my comp what foods are good for the liver and the things i kept seeing over and over is what i eat,broccoli,beets,fish,onions,pea's lots of water with fresh lemon in it,squash,oatmeal,cucumbers as a snack,actually cucumber is really a fruit so...i mean the list goes on all the things good for the liver,ive also been drinking "pom" juice (pomogrante) its a clear 64 oz bottle and it says POM on the from,its found at walmart by thee cold juices,its 10.00 dollors,i started drinking it 4 months ago when i quit smoking,i did some research on it and found that in test done with mice,pom srunk cancer tumers in the lungs,so because an exsmoker can still get cancer,i drink pom in hopes that will protect me,plus pom is been around for a long time,its mentioned in the bible a few times,i guess im thinking it may help protect the body from "hep" seeing its higher in antitoxiants than tea or red wine,from what i found.
are you still working jim? how do you feel for the most part? my doc put me on milk thistle,are you taking it,ive noticed some good chanhes since ive been on it. i really dont have any symptoms,the few i hace i thought were because i quit smoking...i felt really draggy,so i quit smoking thinking it was that,lol...what a trade off,but i also believe that we can eat like rock stars and live a full life with this. i go see a hep doc today at 4:00, i'm not going to do the treatment and oh yeah i heard about the cash side of this treatment and they would surely love me seeing i have some of the best health insurance around so yaaa they would love to suck on that hey :) my email add is there on my site if you wanna connect that way too,hang in there buddy!
deborah
by the way liz,thats a beautiful picture of you,your a breath of fresh air :)
hi there "pontiac" gto <did i get that right,lol :)
my husband just said their nice cars. hes got 2 javelins 71 and a 73! anyhow thanks for writing,oh my god, i was giving plasma at biolife and after the 3rd time the mailman had a letter for me to sign for and when i seen biolife on there i started crying without even know wat the letter was about,i guess it was a gut feeling,our guts do tell us when somethings wrong but sometimes we dont listen :( i made an app with my regular doc. to confirm biolifes blood test results and well,i looked at my daughter and said i'm lucky,it could have been hiv,thank god!!! but then,that stuff doesnt happen to people like me,oooh the hell it dont,lol...who am i !!! how are you doing and did you do the treatment,i forgot now wat you said about that...i just found out that my viral load is 244,000 doc said its not bad...he checked me for signs of the hep and said all looks good,no fluid in the belly and i said >you mean thats fat...lmao :) anyhow i go for a biopsy next wed,have you had one of those yet? plus he gave me a hep a and hep b shot,i ask him if those shots raise the viral load and he said no they dont but when i surf the net for blogs,im hearing people say those shots do raise the viral load but wouldnt the doc said yes if it did,wat is he gaining by saying NO...dont make sense to me. how are you doing overall?
ive had hep c for over 20 years. i have had lot of health problems. im only 27. let me know what u want to know. my email is helios_457@yahoo.com.
im a married women of 4 years and my husband reamins disease free.
Good Morning,
First, I happen to truly enjoy chicken livers along with gizzards to. Second, your in no way all alone. It jst so happens that the third person I met and became very good friends with is a lady that had "Hep C" at the time and acquired the chronic illness I have called Central Pontine Myelinolysis (CPM for short) which is similar to a 1st. cousin to MS. At the time I acquired CPM in Feb. of 2002, physicians briefed me that I was very blessed to even be alive after seeing my MRI.
Bottom Line: Today at 58 years old, I've learned more about God in the last 7yrs. that the previous 51. It's good to have God as my new link to be your and your husbands friend also. Please call on me whenever! I started my writing career in regard to my illness as I help others. She, with the Hep C along with the CPM are truly unique people. G-d Bless...
Franky (boston terrier neuro service companion) and Breeze (that's me)
Advertisement
Add to the discussion