Undiagnosed - White matter disorders of unknown origin (UND)

Undiagnosed Leukodystrophy Website

DarrenB
  • By DarrenB · September 2, 2008
  • 0 replies
  • Hi my name is Darren, We live in the Chicago area and have a 4yr old daughter Sarah. She was given the title of undiagnosed Leukodystrophy in November 2005. For those that have been to the ULF conferences ...

any one else undiagnosed?

tallcrowe
  • By tallcrowe · May 15, 2008
  • 9 replies
  • hi! my 6 year old son is undiagnosed with a possibility of 4h syndrome which is not even an officially named leukodystrophy yet. we have worked with cincinnati children's hospital medical center for about ...

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