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Other leukodystrophies
Dr Knapp
- By zoe4manaia-rain · New reply November 13, 2009
- 9 replies
- hi there i am curious to know if anyone had has the opportunity to meet or have contact with Dr. Knapp in Holland ...
Sams HDLS
- By samshdls · New reply September 15, 2009
- 13 replies
- On Friday, July 4, 2009, Paul, passed away quietly in his sleep, as a result of complications from Diffuse Leukoenchephalopathy w/ Axonial Spheroids. It is fitting that on July 4th, he became free from ...
ADLD anyone with the same illness
- By dragonfly24 · New reply July 20, 2009
- 53 replies
- I have this ADLD but I know it is rare but if someone out there has the same thing. I would love to be there email friend ...
Stop our childern from suffering
- By hudels2 · New reply June 30, 2009
- 6 replies
- MY name is Richard Hudelson, I would like to talk about Leukodystrophy. Me and my wife have a grandson that is 19 month old that is very sick.and he got Leukodystrophy, he just had a MRI done.and we dont ...
HDLS - it has many challanges
- By samshdls · Posted April 17, 2009
- 0 replies
- Hi to all of you. My name is Lisa and I am the primary caregiver for my husband that was diagnosed in June of 2006, at the Mayo Clinic in Jacksonville Fl., with a very rare form of Leukodystrophy called ...
H-ABC
- By JOSHYSMOM · New reply November 29, 2008
- 7 replies
- I have been told there are only 12 cases in the world of this leukodystrophy so far. does any one know any thing about it? My son was fine until about 2 yaers old and then he started falling alot. His ...
