Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Newly diagnosed
Hepititis C causing Leukoencephalopathy
- By kristie777 · Posted November 17, 2009
- 0 replies
- I have written you all before about my sister Robin. She was just dignosed with hepititis C and her Neuro said he now think she has Leukoencephalopathy. She has no clue how she could have got Hep C. However ...
Please help us...
- By Nattyneedshelp · New reply October 31, 2009
- 14 replies
- My 23 year old sister has just been diagnosed with a form of leukodystrophy, they are currently testing the sub type.. We are so confused... There is NO instance of this in our family on BOTH sides of ...
baby girl has MLD
- By miraclesofGod · Posted August 5, 2009
- 0 replies
- mld ...
15 year old daughter
- By DesisMom · New reply July 31, 2009
- 4 replies
- Our 15 year old daughter was just diagnosed with leukodystrophy. We noticed that her grades were slipping and she was having memory issues. She changed schools in February 2009 and the school caught her ...
Newly Diagnosed 8 year old
- By jtw1211 · New reply June 21, 2009
- 12 replies
- My 8 year old son was diagnosed 3 weeks ago with adrenaleukodytrophy, what a horrible disease. He has brain involvement, but does not have Addision's yet. My husband and I have fought with dr's since ...
Abnormal MRI and waiting on VLCFA test results
- By scoutmom · New reply June 4, 2009
- 8 replies
- Is anyone else in between tests and wondering? Is an abnormal MRI a pretty good sign it is ALD? The doctors told us it was--but can't be sure without the blood test. Theye didn't sound very positive though...just ...
Son recently diagnosed w/ Leukodystrophy
- By Disneymom · New reply March 21, 2009
- 25 replies
- Hello, New to this never posted to a chat before. My 7 year old son was diagnosed w/ leukodystophy a few weeks ago. We are waiting for a confirmation on what type. We hope to hear from the neurologist ...
Recently diagnosed
- By Deut31-6 · New reply June 5, 2008
- 5 replies
- My husband has recently been diagnosed with Adrenoleukodystrophy. The frustrating thing for me is not really having a prognosis. Will it get worse? We have 3 children: 1 girl age 15, two boys 14 &11 ...
