Newly diagnosed
- By jtw1211 · New reply October 22, 2008
- 10 replies
- My 8 year old son was diagnosed 3 weeks ago with adrenaleukodytrophy, what a horrible disease. He has brain involvement, but does not have Addision's yet. My husband and I have fought with dr's since ...
- By Deut31-6 · New reply June 5, 2008
- 5 replies
- My husband has recently been diagnosed with Adrenoleukodystrophy. The frustrating thing for me is not really having a prognosis. Will it get worse? We have 3 children: 1 girl age 15, two boys 14 &11 ...
