Living with a leukodystrophy

white matter brain disease leukodystrophy

johnpaulangelchild
  • By johnpaulangelchild · New reply November 26, 2008
  • 19 replies
  • I am a mother of a beautiful 10 year old boy who has this form of leukodystrophy, I would like to talk to someone who knows anything about it or anyone who has it....I just joined this website....so please ...

Another way to see it ...

jolocny
  • By jolocny · New reply November 22, 2008
  • 10 replies
  • I began to get a daily message from Neale Donald Walsh (:Conversations with God" author) and on this particular day I was having trouble getting a hold on my situation with ALD/AMN - it can be so different ...

Welcome

revdocwlk
  • By revdocwlk · New reply June 16, 2008
  • 3 replies
  • Hello! Welcome to this new section of the ULF web site. I am Bill Kintner, ULF Vice-President and a parent of a child with MLD(now deceased). With my wife, Colleen, we have been the vice-presidents of ...

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