Family and friends

How Did You Tell an Elderly Family Member About MLD?

carolrn
  • By carolrn · July 24, 2008
  • 3 replies
  • Our family has recently received the devastating news that our little "Abby" (my grand niece), 23 months old, has MLD and that this disease is degenerative and fatal. My mother, Abby's great grandmother ...

Love and Science 2008 - Next Month

applepie1281
  • By applepie1281 · June 19, 2008
  • 6 replies
  • My husband and I are making plans to attend the conference next month, 7/17-7/19. This will be our first trip to Dekalb for the conference, as our son was only recently diagnosed with Alexander's Disease ...

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