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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Family and friends
I will survive ...
- By samshdls · New reply July 30, 2009
- 11 replies
- ... the first 45 days. I call this "the storm", and for good reasons. The things that have to be done after Paul's funeral, is robbing me of my grieving time. The paperwork, meetings with the attorney ...
Love and Science 2008 - Next Month
- By applepie1281 · New reply July 21, 2009
- 7 replies
- My husband and I are making plans to attend the conference next month, 7/17-7/19. This will be our first trip to Dekalb for the conference, as our son was only recently diagnosed with Alexander's Disease ...
Genetic Termination?
- By pinkcat · New reply February 11, 2009
- 7 replies
- My husband and I have had a young child suffer and die from a leukodystrophy disease. We have a 25% chance of having a child affected by the disease. Recently, tests from a CVS show our 16-week old fetus ...
How Did You Tell an Elderly Family Member About MLD?
- By carolrn · New reply July 26, 2008
- 3 replies
- Our family has recently received the devastating news that our little "Abby" (my grand niece), 23 months old, has MLD and that this disease is degenerative and fatal. My mother, Abby's great grandmother ...
