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Adrenomyeloneuropathy (AMN)
Fampridine-SR... possible treatment for AMN?
- By jchumsley · New reply November 19, 2009
- 3 replies
- Hello, Has anyone heard about this drug? It is being developed for MS but the developers claim that it might be useful for other demyelinating diseases. It works by improving the conductivity of nerves ...
spasticity
- By jchumsley · New reply November 10, 2009
- 15 replies
- Hello, With my AMN (diagnosed in 1986), spasticity is main issue (along with tightness and weakness in my legs). I've been on baclofen since my diagnosis, but I feel that the benefits are less. I've looked ...
Support of mustard oil at Kennedy Krieger?
- By jchumsley · Posted October 18, 2009
- 0 replies
- Hello -- a friend was telling me that Ann Moser and the folks at KKI do not recommend mustard oil. This is (she says) mainly due to the lack experimental research with it and the variability of product ...
AMN - My son and me
- By Amkahler · New reply October 15, 2009
- 15 replies
- I am 56 years old and the mother of a 30 year old son who is severely disabled due to AMN. He was diagnosed at age 10 and at that time just had adrenal insufficiency. He was in the original Lorenzo's ...
Lovastatin and AMN
- By KateNDalton · New reply June 28, 2009
- 17 replies
- My dad has AMN and has been in a wheelchair for a few years now. He steadily progressed to having to use the wheelchair. He started showing signs in his 20's and is now 64. He still has his stubborness ...
Physical Therapy for AMN Ment
- By jds245 · New reply May 7, 2009
- 2 replies
- I am 31 years old with AMN and I use a cane all the time when I go out. I would like to do more physical therapy than stretching at night, but I want to know, what are the best exercises to do to increase ...
AMN Medication
- By DennyB · New reply April 27, 2009
- 12 replies
- Hi to all. I just found your group last night while surfing the net. I am a 51 year old male who has had Addisons disease since I was 12 year old. In the last 10years I have been diagnosed with AMN. I ...
Living with AMN
- By Pio · New reply April 1, 2009
- 5 replies
- I'm 44 years old and using a cane. my brother died when he was 51 as it turned into ALD. if anyone wants to talk, just jump right in. God bless you all ...
Where to get GTO oil?
- By BH · New reply March 14, 2009
- 11 replies
- Can anyone tell me where to purchase GTO oil? I had been getting it from Parrillo Performance in Ohio, but when I called last week (11/12/2008) they said they no longer carry the stuff ...
AMN/ALD Carrier
- By britt_carrier · New reply February 25, 2009
- 4 replies
- Has anyone had issues choking on their saliva? I have been doing this since I was a child then more as and adult. Now I am waking up at night choking on my saliva. If anyone has had this issue, what do ...
Transplant
- By RicardoNogueira · New reply December 11, 2008
- 1 reply
- Hi friends I have 21 years, I made examination of long-chain fatty acids and gave the following result: 3 fatty acids changed, they are: oleic 13.2 reference 19,1-26,3. Linoleic 34.9 17,9-32,1. Linolenic ...
