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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Recommended
Support your group and raise awareness with badges
- By Walter · Posted June 20, 2008
- Journal · 33 recommendations
- Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...
Guestbooks - An exciting addition to Inspire
- By TeamInspire · Posted May 20, 2009
- Journal · 23 recommendations
- Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · Posted June 10, 2009
- Journal · 12 recommendations
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
New feature - profile completeness gauge
- By Tasha · Posted June 12, 2008
- Journal · 9 recommendations
- Greetings from TeamInspire! I'm your friendly neighborhood designer, here to tell you about some new features. You might notice that today we revamped your member homepage - https://www.inspire.com/member-home.pl ...
New feature - additional reply notifications
- By Walter · Posted May 5, 2008
- Journal · 8 recommendations
- Hello everyone. We just added a new feature to help you follow the conversations that you are participating in. You will now get a notification whenever someone replies directly to one of your replies ...
Share your story via video!
- By TeamInspire · Posted June 15, 2009
- Journal · 7 recommendations
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
"HYPOKALEMIA OR LOW POTASSIUM"
- By mandyblue · Posted June 2, 2009
- Journal · 7 recommendations
- I want to share this research information in "My Journal". This is a very long collection of articles, that explains in great detail, about Hypokalemia or Low Potassium. It is for anyone who needs help ...
ADLD anyone with the same illness
- By dragonfly24 · Posted November 2, 2008
- Discussion in Other leukodystrophies · 7 recommendations
- I have this ADLD but I know it is rare but if someone out there has the same thing. I would love to be there email friend ...
Welcome
- By revdocwlk · Posted April 17, 2008
- Discussion in Living with a leukodystrophy · 6 recommendations
- Hello! Welcome to this new section of the ULF web site. I am Bill Kintner, ULF Vice-President and a parent of a child with MLD(now deceased). With my wife, Colleen, we have been the vice-presidents of ...
Moms, you rock!
- By TeamInspire · Posted May 1, 2009
- Journal · 5 recommendations
- Looking for a unique and extraordinary way to say "thank you" to your mom? In honor of Mother's Day, good friend of Inspire Dr. Gwenn (of http://www.PediatricsNow.com and http://www.DrGwennIsIn.com) will ...
Meeting Leukodystrophy
- By cubsportgal21 · Posted September 12, 2008
- Journal · 5 recommendations
- Graduating from high school in 2006. I came to face a disease i knew nothing about. It brought me to my knees, and doctors had no clue to what was going on with me. Until my mom stood her grounds and ...
Guestbooks are now live!
- By TeamInspire · Posted May 26, 2009
- Journal · 4 recommendations
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
Undiagnosed Leukodystrophy Website
- By DarrenB · Posted September 2, 2008
- Discussion in Undiagnosed - White matter disorders of unknown origin (UND) · 4 recommendations
- Hi my name is Darren, We live in the Chicago area and have a 4yr old daughter Sarah. She was given the title of undiagnosed Leukodystrophy in November 2005. For those that have been to the ULF conferences ...
Making a difference
- By mmeitz · Posted February 12, 2009
- Journal · 3 recommendations
- My brother has leukodystrophy- 4H and has to be in a wheelchair for most movement. His condition has affected the whole family as Im certain it does wherever it strikes. My goal is to help people realize ...
my family - info needed
- By britt_carrier · Posted October 10, 2008
- Discussion in X-linked adrenoleukodystrophy (X-ALD) - Female carriers · 3 recommendations
- Can someone please set us straight? I asked my sister to have her VLCFA's tested. Her son passed away from ALD in 2000. My dad passed away with AMN in his early 50's, I have been told that I have AMN ...
My Daughter Reese (4) has MLD.
- By 4Reese · Posted June 16, 2008
- Discussion in Metachromatic leukodystrophy (MLD) - Parents · 3 recommendations
- My Daughter Reese (4) has MLD ...
If any One has Alexander disease as adult
- By Sarina · Posted May 12, 2008
- Discussion in Alexander disease (AxD) - Adults · 3 recommendations
- If so please contact me at let me know what your symtoms are? Ther testing me for it and try to figure things out. WAS diagnosed with Leukodstrophy. Thanks Sarina ...
LBSL кто нам поможет?
- By AND · Posted March 26, 2009
- Journal · 2 recommendations
- Здравствуйте! Друзья! Меня зовут Андрей. Летом 2008 ...
Do you have a child diagnosed with CACH?
- By lexismom · Posted March 3, 2009
- Discussion in Childhood ataxia with diffuse CNS hypomyelination (CACH or VWM) · 2 recommendations
- My daughter was diagnosed with CACH in 2004, she was 14mths old, She is now 6yrs old. To this day there is still little discussion about this type of Leukodystrophy. I would love to talk with someone ...
my baby has effected wiyh VANDER KNAAP DISEASE
- By mbh · Posted February 11, 2009
- Journal · 2 recommendations
- Hi, I got to know that my 8 months old baby has effected with lukodystrophy- vander knaap disease through MRI, MRS reports. Can any one tell me the impact of this disease? i dont know much about this ...
