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Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

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Journals

Support your group and raise awareness with badges

Walter
  • By Walter · Posted June 20, 2008
  • 39 replies
  • Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...

New feature - profile completeness gauge

Tasha
  • By Tasha · Posted June 12, 2008
  • 14 replies
  • Greetings from TeamInspire! I'm your friendly neighborhood designer, here to tell you about some new features. You might notice that today we revamped your member homepage - https://www.inspire.com/member-home.pl ...

A mother or an impaired child needs no saint!

asnyder
  • By asnyder · Posted June 8, 2008
  • 9 replies
  • Most women become mothers by accident, by choice, a few by social pressures and a couple by habit. This year, nearly 100,000 women will become a mother of a handicapped child. Did you ever wonder how ...

help

asnyder
  • By asnyder · Posted June 5, 2008
  • 5 replies
  • my son has had trouble with motor development and weight gain since he was born and recently we went for an MRI that came back abnormal, the neurologist seems to think his symptoms and MRI is most consistent ...

Multiple Sulfatase Deficiency

msdmom
  • By msdmom · Posted June 1, 2008
  • 3 replies
  • My daughter, almost 32 years old, was diagnosed with Multiple Sulfatase Deficiency at age 7 1/2. She is blind, profoundly mentally retarded, must use a wheelchair, and needs gastric tube feedings. Despite ...

15 month daughter undiagnosed

cjackson
  • By cjackson · Posted May 22, 2008
  • 22 replies
  • Hello everyone, I was just wondering if any one can relate!! I have a 15 month old daughter who is my specail fighter! She has had feeding issues since day one. She has a unknown leukodystrophy, and infantile ...

HOTTUBBIN

baker
  • By baker · Posted May 20, 2008
  • 1 reply
  • MY SON TYLER IS 18 YRS OLD WITH ALD LOVES TO BE OUTSIDE IN HIS HOTTUB ITS BEEN A LONG WINTER ...

A little lesson on life.

JAMIESBUSY
  • By JAMIESBUSY · Posted May 19, 2008
  • 6 replies
  • My mother always told mt that "life is what happends to us while we are making other plans." boy now I know what she was saying. I never planned for my children to be faced with this disease, i never ...

New feature - additional reply notifications

Walter
  • By Walter · Posted May 5, 2008
  • 19 replies
  • Hello everyone. We just added a new feature to help you follow the conversations that you are participating in. You will now get a notification whenever someone replies directly to one of your replies ...

Looking for Zellweger Parents

zellmom
  • By zellmom · Posted April 29, 2008
  • 2 replies
  • I am a mother of 2 sons who have been diagnosed with Zellwegers syndrome. I'm looking to network with other parents who have children with the same disorder. Anyone? Zellmom, Turlock, California ...

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