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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
Electrolyte Abnormalities
- By mandyblue · Posted June 7, 2009
- 2 replies
- This information is being posted in "My Journal" for anyone who wishes to use it as reference material to help understand their electrolytes, and metabolic disorders. I have previously promised my friends ...
"HYPOKALEMIA OR LOW POTASSIUM"
- By mandyblue · Posted June 2, 2009
- 32 replies
- I want to share this research information in "My Journal". This is a very long collection of articles, that explains in great detail, about Hypokalemia or Low Potassium. It is for anyone who needs help ...
Exhausted
- By DesisMom · Posted May 30, 2009
- 2 replies
- I have to admit that this is exhausting. Working full time and trying to do what needs to be done for Desi. I feel so bad because she gets bored at home. We are still playing the waiting game and it stinks ...
Information Concerning Hypokalemia/Low Potassium Levels
- By mandyblue · Posted May 28, 2009
- 11 replies
- This is information that I think is very important for those who have problems with low potassium levels. Sometimes it is a metabolic problem that causes the loss of potassium, instead of just the use ...
Guestbooks are now live!
- By TeamInspire · Posted May 26, 2009
- 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
MS/Alexander's Disease
- By rhess3 · Posted May 25, 2009
- 1 reply
- Hi. I have Primary Progressive MS (Diagnosed in my late 40's, about 10 years ago) My granddaughter has been diagnosed with Alexander's Disease-much, much more serious-but many of our symptoms are so similar ...
Guestbooks - An exciting addition to Inspire
- By TeamInspire · Posted May 20, 2009
- 35 replies
- Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...
Have a positive diagnosis
- By scoutmom · Posted May 19, 2009
- 5 replies
- Going to Minneapolis next week, any advice ...
This Hannah...
- By StephLynStill · Posted May 14, 2009
- 0 replies
- This what infantile Lysosomal Disease does ...
Anyone waiting on a VLCFA test, but have an MRI that looks like ALD?
- By scoutmom · Posted May 12, 2009
- 0 replies
- Anyone else out there waiting to find out ...
Moms, you rock!
- By TeamInspire · Posted May 1, 2009
- 0 replies
- Looking for a unique and extraordinary way to say "thank you" to your mom? In honor of Mother's Day, good friend of Inspire Dr. Gwenn (of http://www.PediatricsNow.com and http://www.DrGwennIsIn.com) will ...
First seizure
- By anniechang · Posted April 23, 2009
- 11 replies
- My son had his first seizure that was not caused by head trauma. It happened at school. Thank goodness for the team of staff and teachers that work with him. They handled it with excellence and were able ...
Dogs & Disorders
- By StephLynStill · Posted April 20, 2009
- 2 replies
- I had the opportunity to meet about 5 dogs with Lysosomal Disease (mps, I think), about a year ago. It was really an eye-opening and amazing experience. Now, I keep finding more and more articles about ...
I have COPD
- By jan3 · Posted April 18, 2009
- 2 replies
- I WORK OUT 7 DAYS A WEEK AND AM DETERMINED TO STAY OFF OF O2. I GUESS WE WILL SEE IF THAT IS POSSIBLE. I WANT AS MUCH IN PUT AS POSSIBLE. TO STAY HEALTHY I AM 63 JAN ...
Feeling organized/energized
- By DMBM · Posted April 13, 2009
- 0 replies
- Spring definitely agrees with me... actually got some paperwork done. Even though it's now 7 yrs I'm still struck by how hard following form directions is, and I must look really funny (at Staples giving ...
I can't win!!!
- By Ginger09 · Posted April 13, 2009
- 9 replies
- Hi all, Today I received a letter from the Athena Diagnostics and I guess I won't be having the test for CADISIL done anytime soon. They want me to pay $880.00 for it because they don't accept medicaid ...
Much nicer day today.
- By DMBM · Posted April 12, 2009
- 1 reply
- As always, my outlook is a thousand times improved by sunlight and friends. We held a lovely brunch at our house this morning and then went into Philadelphia to see "Jihad Jones" at Interact. Anyone in ...
Difficult day
- By DMBM · Posted April 11, 2009
- 0 replies
- So far today I have been very down. We went to a movie "Sin Nobre"(good) but as soon as it was finished I went right back to brooding ...
Neurophsyc and CADISIL
- By Ginger09 · Posted April 10, 2009
- 1 reply
- Well I went to my neurologist and she agreed that I needed to be tested for CADISIL! A breakthrough at last! So sometime next week they will come to my house and draw the blood for the test and she said ...
Genetics Lab called
- By DMBM · Posted April 9, 2009
- 0 replies
- Well, Athena Labs just called and told me to call as soon as my "kit" arrives. They will come to me which is great since I can't drive and public transit is rotten here in NJ. Denise ...
