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hi there, my nearly 2 year old daughter has been diagnosed with leuko, but, the doctors are yet to confirm which type, the only type that has been eliminated is MLD, and we've been told there are approx. 600 different types??
its now August and our nightmare began waaaaaaaaaaaaaay back in February!!!
we are awaiting word from a leuko specilaist in Holland and from there, our next step will depend on what she has to say......
its a very upsetting, stressful and emotional time, the 1 bonus is that we've met some wonderful selfless and caring people along the way which is great considering the path ahead unfortunately is yet to shine any light on us..........
