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- By zoe4manaia-rain
- Posted September 10, 2009 at 3:03 pm · 1 reply
- Shared with the public
after 6 long weeks of NOTHING, yesterday we finally got confirmation that manaia-rains mri pictures and clinical notes are being sent to dr van der knaap in holland for a 2nd opinion.
our daughter is still undiagnosed, and when doctors tell you that going by her mri pictures she should be fairly disabled, and she's not, we feel blessed and scared all at once.
we so look forward to getting some kind of answer what ever it be so that our road ahead is much clearer than it is at present.
