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Hello everyone, I was just wondering if any one can relate!! I have a 15 month old daughter who is my specail fighter! She has had feeding issues since day one. She has a unknown leukodystrophy, and infantile spasms. She has had a muscle biopsy, spinal fluid taken, and blood work left, and right. Her newborn screening test was even sent to the Netherlands!! Everything keeps coming back normal which we are blessed for but then it puts us back at square one! She now has a gtube/nissen procedure and is seen by pt, and speech. She is unable to really do anything like crawl, roll over, make sounds. She is such a strong little girl and I am truly blessed to have her in my life. I would love to hear from anyone that can relate!!
