Recommended discussions
- By revdocwlk · Posted April 17, 2008
- In Living with a leukodystrophy · 6 recommendations
- Hello! Welcome to this new section of the ULF web site. I am Bill Kintner, ULF Vice-President and a parent of a child with MLD(now deceased). With my wife, Colleen, we have been the vice-presidents of ...
- By Sarina · Posted May 12, 2008
- In Alexander disease (AxD) - Adults · 3 recommendations
- If so please contact me at let me know what your symtoms are? Ther testing me for it and try to figure things out. WAS diagnosed with Leukodstrophy. Thanks Sarina ...
- By BMA · Posted July 25, 2008
- In X-linked adrenoleukodystrophy (X-ALD) - Female carriers · 2 recommendations
- I am almost 50 years old. I have a son who discovered he had ALD June 2004, his 4th year of college. We discovered he had Addison's disease when he was 13 years old but was never tested for ALD. It seems ...
- By wenALD · Posted May 17, 2008
- In X-linked adrenoleukodystrophy (X-ALD) - Female carriers · 2 recommendations
- This would be nice if we could support one another and maybe give each other information that might help alleviate some problems. I have four grown children. My sons, 33 and 28 were diagnosed in 1986 ...
- By KateNDalton · Posted October 22, 2008
- In Adrenomyeloneuropathy (AMN) · 1 recommendation
- My dad has AMN and has been in a wheelchair for a few years now. He steadily progressed to having to use the wheelchair. He started showing signs in his 20's and is now 64. He still has his stubborness ...
