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hello everbody.
has anybody experienced REFLEX ANOXIC ATTACKS in any leukodystrophy.
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siezures
- By HARLEYSPARENTS
- Posted August 17, 2009 at 2:45 pm · 2 replies
- In Alexander disease (AxD) - Parents
- Shared with the public
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- By lexismom
- Posted August 18, 2009 at 9:31 pm
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Have never heard of, please explain.
- By HARLEYSPARENTS
- Posted August 19, 2009 at 5:29 pm
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REFLEX ANOXIC SEIZURES occur mainly in young children but can occur at any age. Any unexpected stimulus, such as pain, shock, fright, causes the heart and breathing to stop, the eyes to roll up into the head, the complexion to become deathly white/grey, often blue around the mouth and under the eyes, the jaw to clench and the body to stiffen, sometimes the arms and legs jerk. After 30 seconds or so, the body relaxes, the heart and breathing resume and the person is unconscious. One or two minutes later the person may regain consciousness but can remain unconscious for well over an hour. Upon recovery the person may be very emotional and then fall into a deep sleep for two to three hours and looks extremely pale. RAS attacks may occur several times per day/ week/ month. The attacks appear to come in batches.
Unfortunately, because of the symptoms, it is known that RAS is often mis-diagnosed as temper tantrums, breath holding or as epilepsy. It is, therefore, one of the aims of the Group to bring about both professional and public awareness of RAS.
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