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My grandson got Alexander Disease.And he is 2 years old. we just found out it last night.Please let me now more on this.Cant anyone let me and my wife now more about this disease. We are not good on a computer please call us at 205-633-4360 call us after 6pm Alabama time. thank all of you. I wish this dident happen to any child, and to keep them from suffering.
Hello Richard,
I am so sorry to hear of your bad news for your grandson.
You will find some comfort in using this sight. Remember, you are not alone.
My son Brittan also has Alexanders disease. He is almost 18 years old!!
All cases seem to be different but have simular symptoms.
I will try to call you, or you may call me.
My # is 616-531-6918. I am home most afternoons.
God Bless
Amy
Hello, My grandson just had a feeding tub put in today, please pass this on? this is hard on me and my wife, For we are very upset on this ,I wood say he is know 2 Years old.We are going out of town to Florda.I am sarry my spelling is off.For we need help dialing with this.Like i said our number is 205-633-4360, we will be back on 8-29-09and please call?For our grandson is geting bad.Please pray for me and my wife and our grandson,thank you.
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