I'm 44 years old and using a cane. my brother died when he was 51 as it turned into ALD. if anyone wants to talk, just jump right in.
God bless you all.
I'm 44 years old and using a cane. my brother died when he was 51 as it turned into ALD. if anyone wants to talk, just jump right in.
God bless you all.
My son is 33 years old. He was diagnosed with ALD when he was 12. At the time it showed brain involvement and I was told I was in for the "worst 6 months of my life." Well he was in special education for the rest of his school career. He graduated and began a job as a warehouseman.
He still has the job, but I believe that is tenuous. He drinks himself into oblivion every weekend and on all his vacations. He no longer can carry on a conversation. He has no friends. We are afraid to leave him alone. He was evicted from his last apartment, burning pizza in the oven and being passed out in his bedroom.(drunk) He often leaves the stove on, the front door open, etc.
My other son is 28 and starting to have major balance problems, and his leg twitches. He is also dizzy alot. He does not have brain damage.
I am symptomatic and use a walker!
I certainly hope your brother's premature death does not worry you unnecessarily. I give thanks that at least I can still get around. I also still teach middle school . I am 58.
I wish you the very best. God is really Good. I know that we will spend eternity with him if we know and believe in Jesus as Lord. That keeps me going on a day-to-day basis.
I guess I would kinda like to talk about AMN and the progression as it struck your brother. My husband has had AMN for almost 30 years and it comes and goes at will. Currently it is active in a new way and we will be going to the conference in July to see if anything is new since the last conference we attended in 2000. Will you be attending?
my brother used a cane by his mid 20s. he was in a chair in his early 30s and he always had a very unique personality and never had good fine motor skills with his fingers. he never had mri done but i suspect that he had some cerebral involvement for years. at 50, it started taking his arms and his demeanor changed. within a year he was bedridden.
we are fortunate as he barely drank and i gave it up entirely years ago.
i never notice much in the way of changes for either of us. it just seems to slowly but surely progress.
for inspiration, read the first few verses of John chapter 9. it's very powerful.
God bless.
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